Living & Striving: Life with Osteogenesis imperfecta

"Living & Striving: Life with Osteogenesis imperfecta" is the story of the amazingly inspirational people who survive with a rare but devastating genetic disease that makes bone extremely brittle. This is a s trailer for a segment of this film on a young women named Erin Dean who inspired Shoulder High Productions to tell this story.

Category:

Nonprofits & Activism

Tags:

• osteogenesis
• imperfecta
• brittle
• bone
• disease
• OIF
• Erin
• Dean
• Shoulder
• High
• Productions

[xJakestaH]

My name is Jake. I'm 16 years old with Osteogensis Imperfecta with type 3. At times, I feel as if I shouldn't have the will to live, but I look at the upsides of this condition. Aaron/Erin is right, it does make up of different people. I have broken atleast 10 bones and haven't broken since 4 years and greatly appreciated of so. When I look at my parents, I see a smile, but sometimes when I look at them closely, I see disappointment. In the end, family is family and blood is blood. Take care.

[sexibootiful77]

May God bless her..

this video almost made me cry..

I was pregnant and my baby was lethal, i had to get induced she also had OI and it hurts me so bad that i could never meet her.

[thalliadruid]

@xJakestaH It's not disappointment in you. I hope you will remember that.

[DoubletheDuck]

@sexibootiful77 You should consider reading "Handle With Care" by Jodi Picoult, :)

[ravensunn]

im 43 and i have OI my mother was 62 when she passed away she also had severe OI my mom was only 3ft tall

[allanxpoe83]

i have 0i type 4a...im 27 now i havent had a fx since i was a sophomore in hs...late feb. of this yr that i was involved in an mva...and i had a fx on my scapula, tibial plateau, and fibula...oi blows

[sasa8881]

@xJakestaH it`s weird for me to hear from a person who is just a year older than i`m (i`m now 16) and has OI. but one thing i can say to you. I`m perfectly healthy but I also do see disappointment in the eyes of my parents. i know you must think, what can she know, and I know that I don`t know anything about being sick but I know what it means to see hidden disappointment. I really wish all the best.

[psychiqueify]

me 2,, i have type1 OI

but luckily i dont have so much in breaking my bones,,

yet i love my eyes...

it's so cool

[FannyMiley]

I dont have OL but which type did she have type 1 2 3 or 4 somebody tell me I wanna know?

[FannyMiley]

I dont have OL but which type did she have type 1 2 3 or 4 somebody tell me I wanna know!

[rowanmcauliffe]

see is such a great person, inspirational!

[BrieFcon]

You just stay strong as you are :)) I wish all the best for you, live the life to the fullest !!!