Scottsdale man suffers from 'suicide headaches'
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@stigsworth... up to 4 a day!! I must be your hero..
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Sorry to hijack your thread Paul, but it's for a good cause I assure you :) Cluster headache patients are joining up with an Advocacy group known as "Alliance for Headache Disorder Advocacy" (google their name to read more & to sign the petition). This groups purpose is to petition Congress for research dollars to address all headache disorders & will be presenting on capital hill in March.
Send an email to reynoldscindy hotmail.com I'll add you to the "Progress Report" mailings!
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@bsicabgs I've recently agreed to join a committee with other cluster headache diagnosed patients who will be addressing Congress in March of 2012 led by the "Alliance for Headache Disorders Advocacy" group. The goal is to urge Congressional collaboration to find & grant funding to educate, research and bring us out of the closet! Please feel free to send me an email @ reynoldscindy@hotmail.com if you're interested in following the progress!!! ANYONE reading this is welcome also.
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@roxtar10870 noo its like someone inside your head is putting a needle in your eyeball and sticks it in there for like 20 times a minute
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So it's like really bad brain freeze?
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@1961mom1961mom Bigtime!! I am so tired of even attempting to describe this to people, and hearing them say "oh yeah, i had a bad headache a few days ago too".
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The first episode occurs about 5 days after exposure, the second about 2 days after the first, then they continue to compress until they become as close as 12 hours apart (around the 8th episode). From there, the periods expand until the last couple are separated again by a day or more. Following the 16 or so episodes I am completely free of symptoms. Each incident has followed the exposure to wood finish which had recently been applied and the fumes while the finish was drying.
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I am fortunate enough to know my trigger for these suicide headaches. I have been exposed to wood finish on three occasions in the last 7 years. Each time has resulted in severe pain in my left temple which is debilitating and last between 1.5-2 hours each. They come in a series of about 16 episodes of "suicide headaches".
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I know this feeling all too well mine would start with a tinge feelin in my neck on the left side and would start to progress over the topof my head until it was behind my left eyeit shuts you down and is very painful. I would take many many aspirin,tylenol,and ib prof.,, which would last about 30 mins and I would need more!! It seems to never go away just eases up a little!! from sunfall to morning when it would hit, I kid you not but it went away very fast after my wife left me! she smoked cig
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Thanks to whoever posted this. It's now autumn, my designated season for the return of the angry demon, who at 8PM tonight and at 4AM tomorrow morning will once again brandish his branding iron with full force to the back of my left eye for a good 25 minutes. Thank God I am episodic. I truly don't see how the chronics can even keep alive the will to live. Just the thought that I have at least 48 more attacks coming before it subsides is horrifying enough. Chronic CH sufferers are my heros.
Could have said "A Hundred" times worse!
dunskie 11 months ago 9
Great Vid, thanks for posting! Fellow sufferer. Take Care.Dont let the beast win.
darrin792 1 year ago 3