Tahli's Global Developmental Delay

A montage of my daughter who has Global Developmental Delay, Epilepsy and Hypotonia

Category:

People & Blogs

Tags:

• Epilepsy
• Hypotonia

[82llewkram]

Hi everyone! Thank you all so so so much for taking the time to watch and comment on Tahli's video. She is now 4 years old and today she started at a special school's kindergarten program! She is about to get a wheelchair to assist us with taking her out and about as she is still quite floppy. She is happy and loves flowers, her horse and rainbows/colours. She very rarely is seen without a party dress or a dress-up.

Much love to all special families out there xx

[82llewkram]

Hi everyone! Thank you all so so so much for taking the time to watch and comment on Tahli's video. She is now 4 years old and today she started at a special school's kindergarten program! She is about to get a wheelchair to assist us with taking her out and about as she is still quite floppy. She is happy and loves flowers, her horse and rainbows/colours. She very rarely is seen without a party dress or a dress-up.

Much love to all special families out there xx

[82llewkram]

I'm so sorry, I keep trying to reply to you all and it keeps timing out, deleting and messing up the page. So thank you all for sharing your stories, its why I decided to share Tahli's story. The Drs basically gave up on her, but she has proven them wrong! We did get the results of her genetic test which indicate that she also has a genetic issue going on. which was difficult to hear, but we move on for her. I posted a video response with her in it, check it out! Also if you want INBOX and chat!

[fear4bia]

my son is 3 and has GDD but he's still not wallking yet:( started therapy only at 2 and half years old:( gog for therapy still. not too sur if he can walk:( glad yr daughter can walkl.

[82llewkram]

@fear4bia

Many thoughts and prayers that your son will be walking soon. A friend of mine had a similar situation and he walked just prior to his 3rd Birthday. I hope that the early intervention helps you all : )

[82llewkram]

@fear4bia

Many thoughts and prayers that your son will be walking soon. A friend of mine had a similar situation and he walked just prior to his 3rd Birthday. I hope that the early intervention helps you all : )

[mentholathumwooha]

i was so touched by your video. your daughter is so lovely (:

[karajade91]

I just recently started working at a school for children with special needs, Many of them with GDD.. Every single one of them has stolen my heart. You've had to of been so strong to get this far, you are the kind of person in this world we should all look up to. Tahli is absolutly gorgeous.!!

[marysueeasteregg]

Tahli is lovely!  Blessings to your family.

I am sibling, aunt and family friend of individuals with developmental disorders

(not GDD).

[dory4014]

We recently have been blessed with identical twin girls, which up until 4 weeks old were viewed as being normal. (12 weeks old now)

I found Ellie not breathing and with no pulse in the family car, after resuscitating her and having both of them admitted to hospital we found them to have severe Hypotonia.

My girls don't have much head movement and don't move their legs unless in the water.

We are young parents and are coming to terms with life with possibly disabled children.

[radvinka]

hi , thanks for the video, she is very cute

How is your daughter now? how is she development going?

the reason I asked is because mine has some sort of delays but we dont know what itis yet.

thanks

R

[333pinkitty]

shes such an angel..God Bless her and your family.

[bwparker72]

Do you ever feel this way? Your montage gives me hope! Thank you for this gift.

[bwparker72]

Hello! Our wonderful 20 month old daughter also has epilepsy, global delay and hypotonia. She has PT, special education and speech therapy. Like your daughter she sees a host of specialists. All of her blood work, genetic screenings, MRI, PET scan, EEG and spinal taps have come back normal. I am always wondering if everything will be ok. She is so happy and continues to make progress at her own pace, but I am so anxious to know that she will be alright. Will she walk, talk and be able to commu

[carlssonaustralia]

@82llewkram Check out HBOT, worked for my son.

[carlssonaustralia]

@82llewkram My son Lucas who is 3,5 years old has global development delay too. In September this year we did a Hyperbaric oxygen treatment (HBOT) in thailnd, and 76 hours later we have tremendous results. Nowdays I see improvments everyday, it really did and are doing a lot for my son. I got to know about HBOT in July this year.