Pick's Disease

My dad has Pick's Disease. Picks is a form of Dementia similar to alzheimers.

To join a support group for family members of those with Picks or other forms of dementia, please check out http://dementiasupport.multiply.com

This video is about 6 minutes long.

Category:

People & Blogs

Tags:

• dementia
• alzheimers
• picksdisease

[slmercer08]

thank you for your response. The specialists i have seen are neurologists and psychiatrists. I was hospitalized at Duke University in NC for 13 days and Presbyterian in NC twice for 25 days. Both hospitals came up with no new ideas or answers.The only thing they can think of is depression. I thought this made since at first, except this was the best time in my life. I still went along with the depression diagnosis. I tried atleast 25 meds and ECT. Nothing worked and my memory is getting worse...

[barefootmeg]

@slmercer08 I would highly recommend that you read the book The Banana Lady by Andrew Kertesz He's a doctor and he's had a lot of experience with Picks Disease. He says that the disease is often misdiagnosed as either Alzheimers, depression, or various other possibilities. The fact that you've been diagnosed with depression raises red flags. You can get the book on Amazon and when you're done, you might want to take it with you to doctor's visits.

[barefootmeg]

@slmercer08 YouTube is making it difficult for me to get a link to my book review to you. So I'll post it here with spaces to see if I can get YouTube to take it. Just remove the spaces: barefootmeg.multiply.com / reviews / item / 22

[slmercer08]

hi, my name is sara. I'm 18 and I have been suffering from an undiagnosed illness for 15 months. I have had hundreds of tests done and no one know what is going on. It started with behavioral and memory problems and I also forget how to do things such as occasionally forgetting where periods go in sentences or making gramatical errors. now i have been suffering from severe memory problems.I was wondering what drs you went to to receive this diagnosis since it is rare?

[barefootmeg]

@slmercer08 hi sara. my parents were living in elgin, illinois at the time of my dad's diagnosis. have you seen a specialist that knows about the fronto temperal lobe? they often deal with head trauma cases (either due to an accident or a stroke). they should be able to help you.

[omeyemeye]

I just watched this video for the first time. My name is Tia Willin. My husband, Ryan, passed away on 9/10/09. Cause of death was listed as "respitory failure due to Pick's Disease." He was 39.

Ryan's first symptoms appeared late in 2004. I wondered how your dad is doing now. How is your mom holding up? How are youall doing? It's a tough disease, one of the toughest. You'll all be in my prayers. You're not alone.

[barefootmeg]

@omeyemeye Hi Tia. My dad is still living at home with my mom. She regularly proclaims how much easier he is to take care of now. He has less of a "will" so it's easier to control him. He no longer tries to escape the house. He mostly walks in circles & eats anything in sight (including dog food or pills if they're laying around). He doesn't speak at all any more. The constant stream of questions before was part of what was so hard to handle before. So he's worse, but easier to deal with.

[slmercer08]

@barefootmeg thank you for the link!

[slmercer08]

My family has really been affected by this since 15 months ago i was an all A student and had a scholarship to go to college and now i'm stuck at home.

[hollyeburne]

@marinetwobe I am really sorry that your brother and your family are going through this at such a young age. My husband (57) was diagnosed with FTD (similar to Pick's disease) 4 years ago. I would love for him to wear a shirt with 'Excuse me, I have dementia". People have more patience & understanding when they know. I would also like to see those with dementia & their families continue to shine their light without embarrassment.