A video glimpsing into the lives of those who live with eosinophilic disorders, people who are helped by the CURED (Campaign Urging Research of Eosinophilic Disorders) Foundation. For more information visit www.curedfoundation.org !!
I also am a mom that has a 10 yr old child recently diagnosed with EE. The coughing and vomiting is terrible and she has developed shaking. Ericas color drains from her and she takes on a sickly looking yellowish color. She is 43lbs and wears a size 8. I am so grateful for these videos. They have helped family and friends understand what we are going through and makes them aware not to help her cheat on her diet.
My 11 y/o son was diagnosed with Eosinophilic Esophagitis in Oct 2010 after many years of unexplained vomiting. The scariest thing is that my son vomits at night, when he sleeps. When he was younger he wouldn't even wake up, & I spent many sleepless nights hoping he wouldn't choke on his own vomit! Thank you for this video. I think it will help people who don't live with this disease understand just what our kids are going through! From one mom to another...THANK YOU!!!
My son was diagnosed with Eosinopholic Gastroenteritis at age 17. At age 19 it traveled to his esophagus. He is limited to about 5 foods that he can consume. He is currently attending college to major in Nutrition. He plans on going to medical school to become a GI doctor. He wants to find a cure. There is a reason for why God has chosen him to be inflicted with such a horrific disease. Good luck Andrew in all you do! I love you!
I'm a mom of an eosinophilic kid. I can say that this video saved my life, my sanity, when nobody could believe, even myself. After that everything become clear and after an endoscopy, he was diagnosed.
Hi Lisa, I am English (living in Arizona). Been here 11 years. My 8 year old has EE (esophagus). I have the luxury of having UK and US doctor advice. Must admit US is more advanced. We have a strong support group, I feel very blessed. I've met kids younger and older with this disease. They are AMAZING! My heroes. Email anytime...we are going to Great Ormond St in summer next year...
my little boy thomas has eosinophilic collitus i thought i was on my own thank you for letting me know im not .The cakes of ice made me cry so much this is our life god bless all who have to enter this world in pain !!!!i love my boy please find a cure and make him better his mum Lisa x
I also am a mom that has a 10 yr old child recently diagnosed with EE. The coughing and vomiting is terrible and she has developed shaking. Ericas color drains from her and she takes on a sickly looking yellowish color. She is 43lbs and wears a size 8. I am so grateful for these videos. They have helped family and friends understand what we are going through and makes them aware not to help her cheat on her diet.
JanuaryBaby37 2 weeks ago
Great video for a horrible disease. It has totally changed our family. It is hard on everyone. God Bless these children.
kelldog20 9 months ago
this is a great video although i cryed,its a frightening reality and there isnt enough known about this in the UK.
fab24505 11 months ago
My 11 y/o son was diagnosed with Eosinophilic Esophagitis in Oct 2010 after many years of unexplained vomiting. The scariest thing is that my son vomits at night, when he sleeps. When he was younger he wouldn't even wake up, & I spent many sleepless nights hoping he wouldn't choke on his own vomit! Thank you for this video. I think it will help people who don't live with this disease understand just what our kids are going through! From one mom to another...THANK YOU!!!
jswihart06 1 year ago
My son was diagnosed with Eosinopholic Gastroenteritis at age 17. At age 19 it traveled to his esophagus. He is limited to about 5 foods that he can consume. He is currently attending college to major in Nutrition. He plans on going to medical school to become a GI doctor. He wants to find a cure. There is a reason for why God has chosen him to be inflicted with such a horrific disease. Good luck Andrew in all you do! I love you!
tiffany123459 1 year ago
I'm a mom of an eosinophilic kid. I can say that this video saved my life, my sanity, when nobody could believe, even myself. After that everything become clear and after an endoscopy, he was diagnosed.
fmartinellij 1 year ago
Hi Lisa, I am English (living in Arizona). Been here 11 years. My 8 year old has EE (esophagus). I have the luxury of having UK and US doctor advice. Must admit US is more advanced. We have a strong support group, I feel very blessed. I've met kids younger and older with this disease. They are AMAZING! My heroes. Email anytime...we are going to Great Ormond St in summer next year...
myfab2boys 2 years ago
my little boy thomas has eosinophilic collitus i thought i was on my own thank you for letting me know im not .The cakes of ice made me cry so much this is our life god bless all who have to enter this world in pain !!!!i love my boy please find a cure and make him better his mum Lisa x
0869dancer 2 years ago
such a powerful video!
jakivalensilauper 2 years ago
my friends son was recently diagnosed with this disorder.. this video was beautifuly done.
erins2ndbaby 2 years ago