Hutchinson-Gilford Progeria syndrome is an extremely rare genetic condition which causes physical changes that resemble greatly accelerated aging in sufferers. The disease affects between 1 in 4 mi...
Hutchinson-Gilford Progeria syndrome is an extremely rare genetic condition which causes physical changes that resemble greatly accelerated aging in sufferers. The disease affects between 1 in 4 million (estimated actual) and 1 in 8 million (reported) newborns. Currently, there are approximately 40-45 known cases in the world. There is no known cure. Most people with progeria die around 13 years of age. Ashley Hegi is a 16 year old girl who lives in Canada and has Progeria. There have been many TV specials about her. Her mother has a website: http://www.progeriaproject.com/Kids/a... Ashley is an inspiring and courageous little girl!!!
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Ashley, you beautiful soul:). You are such a darling, worrying about not waking your family up at night. You have so much to teach all of us, and you have. I know that you are no longer among us, physically; but, I know that your spirit continues to spread the message of strength, grace, beauty and courage amidst great adversity.
To the rude morons: Get a grip. Ashley is, at a humane level, heck at every level, what most of you can never hope to be. Learn something!
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To the rude morons: Get a grip. Ashley is, at a humane level, heck at every level, what most of you can never hope to be. Learn something!
if i evar meet her, i'd like to be her friend =)
That's all I have to say. We love you. You are one of us.