Chiari Malformation
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Uploaded by ebubbadoo on Feb 2, 2010
a photo montage of my life, as I battle chiari and syringomyelia. Music by Kenny Chesney and Dave Matthew's song, " I am alive" off of the Lucky old sun album.
Chiari malformation is a debilitating illness that effects your brain and spinal cord. extreme head pain, pressure build up, spinal fluid can't pass properly a barrage of awful symptoms.
Uploader Comments (ebubbadoo)
All Comments (8)
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It's a great service for you to have taken the time to make this video an educate many, like myself, who have never heard of this before but can watch this video and get a GLIMPSE of what it must be like to deal with this. A video so personal in nature, like this one, helps people way more than any text book or Google search result. You have a gift to inspire others. Bless you.
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Funny my daughter was diagnosed 10/3 but she started the process 9/15. Wish the walk was here in Vegas, I would definitely be a part of it. Surgery is hopefully this 12/8.
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Thx for sharing the video. I too have Chiari, and admire how Americans have gathered together to do a Walk Across America, it's a real shame that Canadians with this cannot seem to get organized, we don't even have charitable status in Canada, maybe part of the problem is the smaller population in Canada.
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I am so sorry you are going through this, too. Thank you for watching my daughter, Alexis' journey. I will pray for you. Feel free to contact me @ mkjs8@hotmail.com
There are No other people in our town who have gone through this.
You have syringomyelia as well. God Bless you and may He continue to be with you. Love always, your new chiari friend, Julie And Alexis in Pullman, WA
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Thanks Erin for posting this... Chiari definitely sucks!
Just getting out of bed is inspiring somedays :)
With love ... from your Chiari sister in Indiana...
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Thanx Jujubeelation:) lol yeah, getting out of bed is def inspiring!! Man there are days when we just can't move and it really sucks. I have been having too many these days :( Is there a walk near you in September? Sept is National Chiari awareness Month,I'm sure you knew -We will be walking again in Sept here trying to raise awareness one step at a time! Take care
ebubbadoo 1 year ago