Meniere's Disease

Meniere's Disease - Dr. Steven D. Rauch - Massachusett's Eye and Ear Infirmary - Boston, MA

Category:

Education

Tags:

• meniere
• disease
• eye
• ear
• boston

[plapnab]

I was diagnosed with this disease about two years ago. For me it's more like a flare up of pressure, tinnitus, and poor hearing that occurs about every week and a half to two weeks and lasts about 2-5 days. Fortunatly, only one bout of vertigo at the beginning...then never again. But, it's taking my hearing in my left ear. It's a hard disease to live with. Anyone who has it, has my sympathy.

[AnterisOnassis]

Comparing it to an unreliable car is a bit inaccurate, consider a mechanic can usually fix your car. With menieres there is no "fix" that works for every one. I don't mean to be rude, but I think that analogies like these actually just make it harder for people to understand. The facts were great, but the analogy is pointless. Time would have been better spent discussing symptoms.

[menieresworld]

There's a social network for Meniere's Disease sufferers, their family and friends. It has forums, groups, video, chatrooms, games and loads more.

Just Google menieresworld

[menieresworld]

There's a social network for Meniere's Disease sufferers, their family and friends. It has forums, groups, video, chatrooms, games and loads more.

[KnKsgram]

Compare it to falling backwards off the empire state building accompanied with violent vomitting, instant diarreah, crawling on your hands and knees to get to the bathroom, sweating profusely, having to lie flat with no light and no sound....and hope that it goes away in less than 8 hours is what my life was like before the gent.

[KnKsgram]

I saw Dr. Rauch 15 years ago...told me to stay with Umass, offered me no alternatives. I have had severe Menieres for 16 years and have just had my 5th gent shot. Comparing it to an old car is ridiculous. continued next post.

[RunToThisHouse]

@kamariegrosz I've taken doc's advice- no caffiene, low sodium, still doesn't help me. Hadn't heard about potassium in diet. I have taken a vitamin supplement called Lipoflavanoid, not sure it helps.

[stynqueone]

We are NOT like broken down cars-Cold steel heart or just disconected from his feelings? I have had drop attacks for 11 years now and before that milder episodes that lasted up to 4 days when I was 13-I'm 53 now.

[a7x1afi2]

i hope i was misdiagnosed... i'm only 19 years old and i refuse to believe i'm in any way a broken down car.

[graycloud057]

Had it for about two years. Horible dizziness, ringing ears, just awful. Had the profusion procedure done, the medications after will almost kill you. Still having dizzinness.

[zekigpr]

Somebody I know, who does not have health insurance suffers from: Ringing in the ear, vertigo, diarrhea nausea, vomiting sweating, feels like you are losing control of your entire system. Strong episodes repeating about once every six months.. Usually goes from mild dizziness to full blown episodes in about 30 to 60 minutes. Within a week is back to normal, except a lingering mild dizziness and ringing...Has anyone experience these symptoms, in strong episodes?

[kamariegrosz]

take the salt out of your diet. less than 500mg per day. read every label. cook everything yourself. eat potassium like bananas or two prunes per day with orange juice. I don't know why but the potassium off sets the sodium levels. I've had it for 14 years with 12 years in remission and NO surgery just low salt diet...asprin products can worsen it and also calcium suppliments can make ears feel full.