Cavernous Angioma and Children

Having a girlfriend I deeply love, that has to go through such an operation next week - this video is HELL ON EARTH!

HATE the chilling music.

I was diagnosed with one aged 24. Can someone tell me is surgery with no further neurological damage and realistic hope? Do people recover full and no longer suffer symptoms after surgery. Basically what are the odd?

my girlfriend had two cavernomas. one was removed one year ago.
she is a normal girl, there were no bad effects from the surgery. she recently had two seizures, on the same day, but she had forgotten to take the meds.

i want to thank for this video too... i too was diagnosed with one on the left lobe temporal of my brain... went through surgery sucessfuly but i have developed post operations medical conditions like eplilepsy...

I'm 19, I have a total of 12 cavernous angiomas. I've already been to the hospital for the one that's in my occipital lobe. They won't operate because it was only minor bleeding and posed no threat. Though I now have to get an MRI done every 1 to 2 years for the rest of my life. Mine are hereditary, my sister has them as well and has already had surgery.

My daughter and my son at age 18 had surgery to remove cavernous angiomas! This is not always the case. I am their mother and also have multiple angiomas, but have never had surgery or complications.
Although your sister had surgery that does not mean that you will have to have surgery in your lifetime.
Just take care of yourself and live your life to the fullest! God Bless

I can't get any serious help with my hemorrhaging cavernous angioma because no one takes them seriously.

I'm 26.

I feel the same about the team dealing with me. Lol, keep delaying and postponing appointments, Test results getting lost etc, almost like they will only take it serious once it causes serious damage. Thou I must say, the only person who has gone out of his way is Mr Andrew McEvoy, he was not assigned my case, yet I emailed him and he not only responded but also spoke the team that was supposed to be handling my case and made recommendations to them. A very top guy!!!

I would like to say thank you for the vidio, living with 2 children one, who had surgery 2x already and the other on her way, one does not understand what theese children go through until you have to face them and listen carefully to all their concerns and cares because they do need a different kind of love and understanding and as a parent I wish we could have more information to care for them so they do not have to face the surgerys. A prayer for a cure.

This video is a must see for everyone who works with children living with cavernous angiomas! Thank you for this wonderful information.