Even after two surgeries and a proven MRI showing the damage, my GP still acted as if I were making up the pain to acquire pills. He, in so many words, told me that I was drug seeking and that he wasn't going to write any more prescriptions for me. Of course, this is not Lyme disease I'm referring to, but it certainly serves to illustrate the point that doctors should begin by assuming you are telling the truth and working out from there; not by assuming you are lying and making suppositions.
The actual number of infected people is probably over 2 million, for the U.S. If Lyme is spread like Syphillis, (since it's caused by a spirochete), we could have seen just the tip of the iceberg! If so, how many millions might be suffering from this stealth infection? EVERYONE should be concerned about this.
ONE OF THESE sets of docs, -The IDSA was proven in an Attorney General Investigation to have created flawed, "cheap but ineffective" treatment guidelines to serve their own hidden financial interests. Google: CT, AG, IDSA. The other, ILADS has NO AGENDA but to see Patients CURED. Please be careful not to paint it as a conflict of two equally valid groups. We patients are watching and doing what we can to educate others. Please spread the word. See Victoria's Victory on youtube*See what Lyme IS.
Hey guys....PLEASE register at the Oprah Winfrey website and let her know how much you would like to see her do a show on Lyme disease. Dr. Oz thinks the "UNDER OUR SKIN" documentary is wonderful but a show about Lyme won't be done unless she sees lots of interest. Request that LLMDS and patients be the guests so that we can be heard. Also, Daryl Hall would make a great guest. OPRAH needs to hear about YOUR experience with Lyme disease. WE ARE ALL IN THIS TOGETHER !
I wonder what would happen if Dr.Henry Masur got infected with Lyme disease and could no longer concentrate? What if he tried every-thing else out there and nothing helped?
Do you think he would quit being a doctor ??? No!!....He would probably look for a Lyme specialist or prescribe himself antibiotics. People that have Lyme disease are not idiots. I would love to flush my antibiotics down the toilet but they mean the difference between thinking and not being able to think.
walk a day in my shoes then tell me chronic lyme disease doesnt exist! Fatigue, extreme joint pain, and brain fog.
romeodelta1178 2 months ago
Even after two surgeries and a proven MRI showing the damage, my GP still acted as if I were making up the pain to acquire pills. He, in so many words, told me that I was drug seeking and that he wasn't going to write any more prescriptions for me. Of course, this is not Lyme disease I'm referring to, but it certainly serves to illustrate the point that doctors should begin by assuming you are telling the truth and working out from there; not by assuming you are lying and making suppositions.
UseMeAbuseMe4Ever 8 months ago
@gomilou get it better with a high fat diet. TB was cured via high fat diet in 1940s
Both are slow growing bacteria's that enter brain, meninges, CNS... as does fat whihc has antimicrobial properties.
Catherine8raw 1 year ago
The actual number of infected people is probably over 2 million, for the U.S. If Lyme is spread like Syphillis, (since it's caused by a spirochete), we could have seen just the tip of the iceberg! If so, how many millions might be suffering from this stealth infection? EVERYONE should be concerned about this.
gomilou 2 years ago
The IDSA position is killing people! We are suffering and dying because we cannot get testing, diagnosis, and treatment! This is just criminal!
gomilou 2 years ago
ONE OF THESE sets of docs, -The IDSA was proven in an Attorney General Investigation to have created flawed, "cheap but ineffective" treatment guidelines to serve their own hidden financial interests. Google: CT, AG, IDSA. The other, ILADS has NO AGENDA but to see Patients CURED. Please be careful not to paint it as a conflict of two equally valid groups. We patients are watching and doing what we can to educate others. Please spread the word. See Victoria's Victory on youtube*See what Lyme IS.
TickedOffLIterally 2 years ago
Hey guys....PLEASE register at the Oprah Winfrey website and let her know how much you would like to see her do a show on Lyme disease. Dr. Oz thinks the "UNDER OUR SKIN" documentary is wonderful but a show about Lyme won't be done unless she sees lots of interest. Request that LLMDS and patients be the guests so that we can be heard. Also, Daryl Hall would make a great guest. OPRAH needs to hear about YOUR experience with Lyme disease. WE ARE ALL IN THIS TOGETHER !
God Bless,
Elaine
ecftube 3 years ago 2
I wonder what would happen if Dr.Henry Masur got infected with Lyme disease and could no longer concentrate? What if he tried every-thing else out there and nothing helped?
Do you think he would quit being a doctor ??? No!!....He would probably look for a Lyme specialist or prescribe himself antibiotics. People that have Lyme disease are not idiots. I would love to flush my antibiotics down the toilet but they mean the difference between thinking and not being able to think.
Elaine in VA
ecftube 3 years ago
Hello everyone,
Wrote a Lyme brochure with the help of 2 Lyme specialists. Will email to anyone.
Elaine in VA
ecftube 3 years ago
Thanks for posting this..
LymeKerry 3 years ago