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Dystonia Update, 5-31-11: Upcoming DMRF Symposium and the soreness from DBS

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Uploaded by on Jun 3, 2011

Ahhh, the update! I finally figured out how to get videos off this darn phone! I hope everyone is well and hope you can go to Chicago Aug 19-21st!!

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  • Keep going Amy...we are all watching your video updates :) :) ♥♥♥

  • God Bless you amy your in our prayer

  • Good to hear you coming of the meds,I am now on the baclofen train Low dose ,then as dizzy as ever:)Now being diagnosed with generalised.

    Too many this is a road less travelled,and you have bravely travelled it,now I have to travel it and your video epilogue is a revealing and inspiring journey into Dystonia and the path for the newly diagnosed.

    It really is a weight on the shoulders and a constant companion

    Much respect,Kudos,All the best

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