Niamh's Story - Living with a Seizure Disorder
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Uploaded by alisonmaguire on Jul 24, 2009
A slide show depicting the life of a little girl called Niamh with a complex epilepsy syndrome and underlying metabolic disorder.
Uploader Comments (alisonmaguire)
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All Comments (19)
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GOD BLESS
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A beautiful girl! God bless you all
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I am so sorry for the loss of your beautiful daughter. A moving tribute from a loving family. X
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god bless you all!
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God Bless her. Too beautiful and pure for this wretched world and saved into heaven's arms. Parents must be the strongest people in the world.
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Beatiuful girl :-) but sooo sad :-(that she passed
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she is so beautiful.my daughters 7 months she started having the same seizures at 6 days old diagnosed with mpei at 5 months, we tried the diet she couldnt tolorate it. she lived in 3 hospitals the first 5 months of her life and got to come home 2 days before christmas and hasnt had to go back still have fingers crossed they told use that she wouldnt live to be 2 since she was having over 100 seizures a day. im sorry for your loss
michellecampbell1000 1 week ago
@michellecampbell1000 - Hi michelle, your Neveah's video is beautiful and made me cry. The pics of your beautiful baby in hospital brought back such vivid memories of those early days. They told us Niamh wouldn't make it to 2 but she was a little fighter and kept proving them wrong so don't give up hope.
alisonmaguire 1 week ago
@alisonmaguire
alisonmaguire 1 week ago
@michellecampbell1000 Also MPEI has a yahoo support group and face group that can put you in touch with other MPEI mums & I made a MPEI website that has lots of info that might be helpful? You can mail me direct from there but it wont let me type the address into this post so dont know how to get it to you? x
alisonmaguire 1 week ago