I have Antiphospholipid antibody syndrome...

-Lupus Support Groups,
I really like going to the lupus support group. It really helps to see and talk to someone about having Lupus or APS.
Find a Lupus Support group near you[:
http://www.lupus.org/webmodules/webarticlesnet/templates/new_empty.aspx?artic...


-What is Antiphospholipid antibody syndrome
http://en.wikipedia.org/wiki/Antiphospholipid_syndrome

-What is Prednisone
http://en.wikipedia.org/wiki/Prednisone

-What is Warfarin
http://en.wikipedia.org/wiki/Warfarin


Thanks for watching[:

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Anna Nalick-Breathe

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People & Blogs

Tags:

• ashleys videos
• makeupbyashley
• Lupus
• What is Prednisone

[rainbowbrite24]

Very good video. I was diagnosed with Lupus almost a year ago now and I also have this along with it. You can have this without having Lupus though. Lots of people have it just on it's own but it's more commonly seen in those with auto immune diseases such as Lupus. So it's actually not a form of lupus it's a totally separate thing but with Lupus you can often have an array of other diseases along with it, this being one of them.

[rainbowbrite24]

I see this video is almost 2 years old now...how are you doing? Your video concerned me because all the symptoms you were describing were symptoms of Lupus. And I was surprised the doctors said you may develop Lupus and not that you have Lupus. All your symptoms...rash, nausea, joint pain, headaches...are all Lupus symptoms. You probably have Lupus and because of that developed the APS. If they still have not said you have Lupus I highly recommend you get a second opinion.

[MakeupbyAshley]

@rainbowbrite24 Thanks for the comment. My doctors test me for lupus every other month. I still dont have it. I also got a new line of doctors. Children's hospital wasn't doing anything to help me and they also diagnosed me wrong so i dont have Autoimmune Hemolytic Anemia. I just found that out 3 months ago. My new doctors are helping me very much, and Im very happy to have them. thanks again for looking out for me[:

[MakeupbyAshley]

@rainbowbrite24 Well all my doctors over the last 7 almost 8 years have told me that ASP is a form of lupus, and Ive seen about 4 different doctors, and they all told me that. My new line of doctors test me for all different ammune diseases ever other month including lupus and i dont have it. thanks for the comment.

[bubbiz99]

I am 42 and was diagnosed with this at 32. I am so sorry to hear u had this at such a young age. Your video is well done. I know how bad pain can be every day. No one knows unless they have a lot of pain. Then some medical professionals treat u like u just want drugs, huh? keep up the videos maybe we can help ppl to understand pain and how to treat it. Good job!!

[MakeupbyAshley]

@bubbiz99 thank you so much for the comment. i really want to make a new updated video on APS. some time this year hopefully[: i started going to lupus support groups, and they really help. thanks again.

[mammabutterfly75]

I love your videos keep them up !!! If you ever just need a friend to talk to send me an email or something I know it's hard being young and being sick all the time.

[1IvoryLady]

While I was looking up Hughes Syndrome (Antiphospholipid Syndrome), I was so pleased to come across your video ... your description of this disease was easy to understand. I'm 51 and have recently been told by my Rheumatologist that I have an autoimmune connective tissue disorder that mimics Lupus (I take Plaquenil for that) I have also tested positive for APS and I am waiting for further confirmation on this. I'm hoping that a cure comes soon for your sake as well as others. Take care.

[fishlawyer1]

Great video. Thanks for sharing. My dad is a Rheumatologist and he has many lupus patients. I recognized your rash right away. Stay strong.

[musteyhey]

VERY GOOD VIDEO I HAVE THIS SAME THING AND IM 43 STAY STRONG

[Ihavelupus2]

I hope u email back cuz we share the same diease ,. My drs wont give me meds

[Ihavelupus2]

i also have the same lupus u have its painful they told me if I get preganant I can died im not n remision yet my lupus is active and all I can take the dr say is blood thinets im like wat I be in so much pain

[jeanams23]

I am 27 and I have primary APS I found out when I was 23 weeks pregnant my son is now 8 1/2 months old. I am currently taking one baby aspirin a day. I had no idea you could be so young and have all of these side effects like stroke etc. Thank God I have not had any problem from it. Only thing I had was preeclampsia during my pregnancies.

[MakeupbyAshley]

@1IvoryLady I was taking steroids for the last 6 years and it wasn't helping so they just started me on plaquenil too. it working very well but its a very harsh pill, be very careful while your taking it, and you take care too[:

[MakeupbyAshley]

@chandillylace Thank you very much, and tell your friend to stay strong[: