Vasculitis

Sick for years and don't know why? Find out what I learned!

www.vasculitis.ca in Canada & www.vasculitisfoundation.org in America

Category:

People & Blogs

Tags:

• Vaculitis
• Wegener's granulomatosis
• bechet's
• kawasaki
• central nervous system

[honeybabe214]

the doctor said its an allergic vasculitis..i dont have any idea about this one i take a lot of medicine but it keeps on coming back..

[Cheesewyck]

@honeybabe214 I understand the frustration...big time! Any form of vasculitis can take months to years to get a confirmed diagnosis. Once that diagnosis is in place, treatment is short term. Give it more time and patience, that's all you can do. Good luck.

[honeybabe214]

im have red patches in my foot for almost a year the dermatologist said that this is a vasculitis ive done some test and i have and i have high urine infection...he gave me antibiotics but after i finish taking the medicine it came back again together with the red patches...this red patches will almost cover my whole foot..urine infection can cause vasculitis?pls help..

[Cheesewyck]

@honeybabe214 It's hard to say if it's related to vasculitis. The urine test checks for blood and protein to indicate something is wrong with the kidneys. Red patches could be a number of things not related to vasculitis. Keep in mind there are 15 types of vasculidities and finding out which one you have can take months to years to get a confirmed diagnosis.

[neil1758]

To be honest I wish it was wegners as it could be something more serious and at least there is treatement for wegners. thanks for all your help really appreciate it.

[Cheesewyck]

@neil1758 You're welcome.  Sorry to hear it's nothing we've talked about. Then again, them telling you it's not Wegener's is iffy too... I was told it's nothing until it presented itself more clearly as time passed.

[honeybabe214]

now i finish taking prednisone but still i have this rashes on my legs and it gets worst than before...

[honeybabe214]

@Cheesewyck tnx a lot..now im taking prednisone 5mg 2 times a day for 1 wek,1 1/2 for another wek and once a day for the last wek..hope it will improve my situation..

[honeybabe214]

@Cheesewyck now my feet are so bad it is full of red patches the doctor said it is allergic vasculitis..i take so many medicine but it keeps on coming back..im so tired to go to hospital because i think its useless...

[smathews24]

Thanks for the info. Very helpful!

[cassiesmum]

What you say is so true!! There are times when I'm unwell, but, I dont have all the symptoms at the same time.. I also thought I had the flu, but about 4 weeks later it still hadn't moved,.and when you said you go light headed after eating I nearly fell off my chair!! so do I, and I just thought I was going crazy!! How do you cope with the periods of utter weakness??