Not having a thyroid sucks....Update!

Here's an update on what has been going on with my thyroid situation. Making this video made me exhausted, lol. Enjoy!

Category:

People & Blogs

Tags:

• ooshkey
• thyroid
• cancer
• frustration
• doctors
• endocrinologist
• synthroid
• blog
• vlog

[msneter1]

I was diagnosed with thyroid cancer a month ago and I wanted to know, how long after your diagnosis did you have surgery?

[ooshkey]

@msneter1 I actually didn't know I had cancer until after my first surgery. When a biopsy was done on April 2008, the results came out as inconclusive, which resulted in my first surgery also in Apr 08. Once the nodule was taken out & further analysed, the cancer was discovered. This resulted in my second surgery in July 2008. It took a while for the results to come back, which is why there's a big gap between the 1st & 2nd surgery

[angelik227]

hello, based on your experiences would you recommend the radioactive iodine treatment or the surgery? I have hyperthyroidism and my doctor they only thing he say is to the radioactive iodine treatment. I will like to know what you think.

Thanks

[ooshkey]

@angelik227 well, I had surgery first, then I had the radioactive iodine treatment done. The reason I had surgery was because of the biopsy results. The nodule in my thyroid was inconclusive. Hence, surgery determined that I had cancer. I later had the treatment to kill off any thyroid cells in my body that could possibly have cancer. I hope this all makes sense. :)

[lucidity4]

@jackaaaaay I feel for you. Wow your nodules are HUGE. I HAVE insurance and could not get anyone to take me seriously. So I literally told all the docs to eff off, they were fired, found another who would listen, and discovered I have a rare form of it and have to have my thyroid and part of lymph nodes removed. I'm scared but also tired of choking and being in pain all the time, so looking forward to it. Best of luck to you!

[jackaaaaay]

I have had tyroid problems for 7 years now and because i didnt have health insurance I couldnt get a doctor to take me seriously. I got my native american roll number which entitles me to healthcare at the IHS facilities and started to try to get something figured out a year ago.... just last week they decided to take it out...... AFTER 7 YEARS..... nodule on the right is greater than 6 CM and nodule on the left is 1.09 CM.... i look like i swallowed a LEMON! no surgery date yet... soon though!

[LadiiNdea]

I hear getting medical care outside of the states is the best. I don't have hyperthyroidism and I was told the next step is doing a biopsy and it's frustrating waiting around for answers ... I pray all turns around for you and hopefully you will find your passion for life again.

[eco4lyf808]

@eco4lyf808 My family might go for winter break. I'd love to get all my motivation back after regaining good health way down south by the beautiful country side of mexico

[eco4lyf808]

@eco4lyf808 I think i'll go to Mexico...

[eco4lyf808]

so i finally found the ANSWER to so many things i've been experiencing! but i'm gonna be in this state of unhealth for at least another month BECAUSE THE HEALTH SYSTEM IN UNITED STATES SUCKS BIG MONKEY BALLS SO I WILL BARELY BE DIAGNOSED IN ABOUT A WEEK AFTER STARTED TO SEE DOCTORS ALMOST 2 MONTHS AGO!

[eco4lyf808]

but anyway i wanted to check if i was prediabetic. so blood tested healthy in everything, but they noticed my thyroid was underactive. i can't really explain all of my feelings about knowing my condition once and for all. i've struggled SO MUCH. YOU CAN'T IMAGINE!!! for years i've been struggling. i feel like a zombie now, and i feel like i've known all along but no one else could possibly understand, and i feel like it's too late, but as i always have, i try so hard to overcome all of this

[eco4lyf808]

the health care in the states is a bi.tch. thyroid diseases are a b.itch!! i'm in the very begenning processes, but i've had these really shitty symptoms and depression for a very long time. the way i found out was by miracle. no matter what i told ANYONE about the issues i've been having, even to myself it was hard to believe there could be anything possibly wrong in my health. i thought what was happening to me, was life.............

[BrittanyHughes1123]

I had surgery 3 months after being diagnosed the doctors completely misdiagnosed me I was only 19 at the time it was awful.. I completely get it .. I had to get my thyroid removed all in one shot .. the entire thing .. I am still going through the motions a year later .. I totally get it.

[tamrakat]

I know how you feel. It sucks to not have a thyroid. I never feel like I've had a good night's sleep, I ache all over and feel depressed and brain-fogged.