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Garrett's Journey

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Uploaded by on Mar 7, 2009

Legg-Calve-Perthes Disease Perthes' LCPD

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Education

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Uploader Comments (tbuske1)

  • God Bless you for sharing this!! My son Hayden, 7, was diagnosed in March 09, has been using crutches. We are now trying to decide the next step with our doc telling us surgery, but the specialist at Children's in Boston to go with petriecasts. I am so at a crossroad here. We have one more appt. w/another doc this Thrsday and will have to decide then. It is hard to see your son like this but he adjusts to it all so well. Thanks~ and remember, if God brings you to it, He'll bring you through it!

  • Garrett is unbelievable! He never complains. The biggest struggle is his range of motion. He has had surgery and petri casts three times in the last nine months. We go back in two weeks and pretty sure they will need to do it again. His doc at Shriner's said he is the first kid he has had to do it on three times and will continue to do it if needed. That was his attempt to motivate garrett to settle down. Garrett's reply was that he "wanted pink casts next time!" Silly boy.

  • My son is 10, was diagnosed St Patrick's Day 2008. He also goes to Shriner's in Chicago. Do you see Dr. Altiok? He is wonderful! My son had one pink cast (for the boys to sign) and one green cast (for the girls to sign). The best to you! That ROM is so very important!! and sometimes difficult for the parents and the child to keep up the work to maintain it!

  • We do see Dr. Altiok and he is great!. I ran into an older child with Perthes when Garrett was there for a week long of physical therapy at the hospital. Maybe that was you guys. Did you recently come back from another country? Garrett has now had three surgeries for ROM but it is a constant struggle. Not only is he active, he sleeps, eats & breaths sports & plays with his 10-year-old brother and friends. We just recently returned to Shriner's a few weeks ago & his ROM is only 30% : (.

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All Comments (24)

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  • Hang in there Garrett stay strong:)

  • What a brave young boy. Brings back all the memories of when I was a child too and I know how hard it is, but he keeps smiling. Best of luck in the future :)

  • poor kid  hes somewat lucky he got a hot nurse!

    i h8 perthese i went thruogh it

  • poor kid

  • I am new to Perthes. I have a 3 1/2 year old son who was just diagnosed with this. We are taking the watch and see method every 3 months with xrays. What are the chances of his bone healing on its own without surgery? Most of what I see online is where the children end up with surgery sooner or later.  Any thoughts are very appreciated. Still reading and learning about Perthes. Thanks, Shannon

  • Great Garrett !

    Thanks for the video.

    My little Stefano (3y and half) is just beginning his fight against Perthes!

    And he will win! Bye from Italy

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