Nystagmus

Possible Nystagmus in Gabriel's eyes.

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• Gabriel
• Nystagmus

[tmmac1011]

He has been followed closely by his eye doctor since 3 months. when i heard his diagnosis it broke my heart. He had surgery last January to all 4 eye muscles to correct his head tilt. it was so hard when he was little to be asked all the time what was wrong with his eyes & why he tilts his head. after his surgery the head tilt is nearly gone and with his glasses he has nearly perfect vision. the shake i am told will never go away but he is doing very well - everything a 5 yr old should.

[dbdjet]

Thank you! I wish the best to you and your family. We are looking into this type of surgery when he gets a little older.

[ganga132]

Hi there. Can you please advise if Gabriel does have Nystagmus? I notice Gabriel is now wearing glasses. Our six month old eyes began to show nystagmus at 3 months and were hoping its transient infantile nystagmus as all other checks with his eyes are ok. Any information you can provide is much appreciated.

Regards from WK&J Perth Western Australia

[dbdjet]

Gabriel was diagnosed with nystagmus at 7 months. While at the doctor's office the pediatric ophthalmologist noticed that the curvature of his eyes was quite far-sighted for his age. He was given glasses and he has worn them for the past year. His vision greatly improved and the nystagmus abated considerably. Just one month ago we were told by the same doctor that Gabriel would not have to wear glasses. At present, his nystagmus is minimal.

[cavemeister]

That is one cute child. I have Nystagmus too and i feel sorry for that kid knowing what hes in for :(. I hope he deals with the torture well :(.

[dbdjet]

Like what?

[imamcallen]

thats so true!My daughter is 28,and it has gotten better! 

[sonjajessen]

I would have to agree never tell them they cant do somthing let them try and they will figur it out. My parents were told that I was blind when I was born up to about 2 months slowly my vision got better. My life is pretty normal but I can only drive from dawn till dusk (atleast thats what dmv says) but I have noticed it is getting worse now that im getting older but maybe thats just age and stress

[LAshlieH]

@LAshlieH

Your kids will be fine. If you treat them normally they will be normal. Never tell them that they can't do something bc of their vision and they will never think that way. They should be the ones to decide what they can see. I have ocular albinism and nystagmus. My vision is 20/170. I live on my own. I am currently in grad school. I use telescopes and magnifiers for school work and virtually all reading. I can drive. My parents were told that I was blind at 3 months old.

[LAshlieH]

I want all the parents out there who have watched this video because their child has nystagmus or another visual condition that everything is going to be okay. Nystagmus tends to get better as you get older. You become better at focusing and may even be able to stop the movement altogether when focusing on an object.

[jlynne028]

My son was diagnosed at the age of 4 months after having many surgeries. He is now 5 and had 2 surgeries on his eyes. Nagstagmus does not go away. But it has became our normal. Many people ask and we will explain. We were told he got it from lack of oxygen during previous surgeries! I have already taught my son Never say Never! He is 5 and has survived 14 surgeries. This precious baby will be just fine!

[anthtom11]

@zidane583 well i have nystagmus and i have visual imparment so... yes it can :P

[anthtom11]

@dbdjet special treatment which he might not even need yet dumb ass so called "specialists" say he does, bullying, dickheads calling him a druggy, not being good at sports. i have nistagmus 2 :/

[TheFiestychild]

I am a mom of a almost 10 year old boy with CN who has yet to be operated to fix the eye muscles. My comment is related to school, I gave the school office and his teachers information on CN so they could be aware of it's implication (reading medium/small print from far is impossible for him). I taught him not to tolerate any bullying and he hasn't, and to always know who he is and not to not let others define him and so far, so good! best of luck to you :)

[cippo007]

@tmmac1011 They will make fun of him, he has to get used to it :D Had the same experience

[tmmac1011]

@karmilovich your son sounds exactly like mine!! diagnosed around 3 months. He is six now and wears glasses for astygmasism and does very well in school. He did have surgery to correct his head tilt (though still there slightly). He plays ice hockey and street hockey. My only fear is that kids in school will start asking questions - i hope they will not make fun of him.