Uploaded by giryrose on Jan 2, 2011
With your help...we can help March of Dimes raise money to help little miracles like ours.
Every day, thousands of babies are born too soon, too small and often very sick. The reasons ranging from the unknown, birth defects, infection, etc. My son Joshua was one of those babies. Along with my friend's children Kyrie,Aiden, Shane, and nephews Dillon & Harvey.
My son Joshua was born early and with a birth defect, gastroschisis. He spent 3 months in the NICU and required many surgeries. He had a broviak IV till he was 6 ...mo. & feeing tube till he was 1 1/2. His life has been fraught with difficulties due to his Short-Bowel Syndrome from the defect.Gastroschisis cases are rising, from 1 in 10,000 to a staggering 1 in 2,500 now! And still there is no known cause of this defect.
Shane is a miracle. Born to Melissa and Richard, he was unexpected. They had realized that they might not have children, when Melissa discovered she was a second trimester into a pregnancy. They were THRILLED! Then her water ruptured at 21 weeks. The outcome was not hopeful according to Dr's. Melissa held on, and at 24 weeks she was admitted into the hospital. We walked for "hope for Shane" during the 2010 walk. Shane held on strong until 31 weeks. An absolute miracle! He experienced a collapsed lung and was 3 lbs 4.6 oz. He had a long stay at the NICU, but was surpassing all expectations for him. He's now a happy healthy awesome little baby.
BJ and Heather's daughter Kyrie, while although had a normal delivery...it was discovered that she had a hole in her heart. She's very tiny for her age, an itty bitty as we say. Dr's monitor her heart condition closely and are only waiting till she's old enough to repair her heart.
Aiden is Nina & Curtis' son he is the 1st born twin & has Reoccurring Respiratory Pappilomas.He has had 14 surgeries since the 1st one at 1 1/2.Fortunately, the pappilomas have stopped growing for now.This condition is Extremely rare.
Dillon and Harvey are twins born to my sister-in-law and her husband.They were born prematurely and were on and off oxygen. They came home and are very happy, healthy little boys, who love to be mischievous.
Our team is walking in March for Babies because we want to do something about stories like ours. I know you care, too. That's why I'm asking you to join us. It's easy: just click the join this team button.
If you can't walk with us, please help by donating to our team. You can do so right on this page. Thank you for helping us give all babies a healthy start!
The mission of March of Dimes is to improve the health of babies by preventing birth defects, premature birth and infant mortality.
Donations are secure. If you wish to donate I ask that you donate to a specific team member to help them reach their personal goal.
our team page is here: http://www.marchforbabies.org/team/t1505860
then just scroll down and choose a team member!
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@ashley001z Bless your daughter. Short-bowel syndrome is a long road, and I really wish you the best. My son is 8, and while not always healthy, he's happy and a good kid. He doesn't let it get him down, and has only ever asked once why he's different. He sees himself just like every other kid.
Did your daughter have Gastroschisis?
giryrose 1 year ago
My daughter Mariah was born 7 weeks ago with short bowel syndrome. She is doing so well at this time because of charities like the March of Dimes. This is not a well known disease and until you have a child or close family member with a condition such as this, you may not be aware of how many sick children there really are out there. God bless all of the charities and children they are helping...
ashley001z 1 year ago