Action Myclonus / Dystonia / Tremors

If you have any questions or comments please leave them below and I will try and answer them the best I can :-)

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[Gangrel208]

Does it affect your walking at all?

[beckyngaz]

Hi

@Gangrel208

No my disabilities does not affected my walking, but saying this I'm not the most sure footed person lol :-) x

[eglmaniac]

do you have any trigeminal disorders?

[beckyngaz]

@eglmaniac

Hi I do not have trigeminal

[beckyngaz]

@elineepie I'm already under a neurologist, which I see once every year. Thanks for your interested though

[elineepie]

@Lesleychill If I were you I would let someone look into this. I think your GP can refer you to a neurologist and/or neuropsychologist with a research question. To me your complaints sound more like myoclonus or chorea (not tremor). But I cannot say anything concrete about it, just by reading your description.

[beckyngaz]

Hi Lesleychill I was born with the condition :-)

[Lesleychill]

You poor sweetheart - would you be able to say how it started? I am very worried I have tremmors which have started (about 5 months now) started in my little finger mflicking then a rolling movement between little pinky and thumb. Now it's both sides quite violent jerking in hands and arms and neck! I'm very scared. Thank you for sharing - all these videos help knowing and understanding the problem xxx

[beckyngaz]

To Egimanic - I don't have trigeqminal disorder. May you please tell me what this means?

[beckyngaz]

@fgod999

To Fgod99

The thing that affect me the most is my speech