My Life with Lupus

Sending you all my Love and Light.

Category:

People & Blogs

Tags:

• Lupus
• SLE Lupus
• Chronic Fatigue
• Pain
• Inflamation
• Fibromyalgia
• Macular Degeneration

[91tiga]

youre a brave woman to come off your meds like that. i hope your remission lasts a long time. as my daily regimen grew i thought about the same thing just chucking them all out. i think im more happier now and cooperative since meeting dr kompourars last janurary. even wearing my oxygen for my pulmonary hypertension doesnt bother me thanks to dr elwing. im gonna root and pray for you. you go girl!

[WillowDove40]

@91tiga Thank you! I will do the same for you. :-)

[lupiemelly14]

So great to see you back sweetie. I'm glad you are stable right now and look forward to hearing more good things from you. I have recently found out I have glaucoma and cataracts probably lupus related being as I'm 39. Been having lots of eye pain and trouble seeing. Docs were talking about doing a iridotomy where they put wholes in your eyes to relieve the high pressure but not doing that just yet, too scary. Pain wise, weather isn't helping but I'm making it. Just wanted to say hi, ttyl:)

[WillowDove40]

@lupiemelly14 Hi! It's great to be back. Sorry to hear about all the eye troubles and pain. :-( I hope you get some relief very soon. I'm glad you stopped by and said hi. Keep doing that. Sending you my love and light.

[WillowDove40]

@elizawhat Yes, I do have patches of skin that just hurt. That's part of why they decided I had Fibromyalgia. Most peole with Fibro have certain hot spots. I have those spots and I have days where my whole body hurts like that...like a sun burn all over. That comes with the inflamation I get for no reason at all. I'm more annoyed then anything else though. I used to be scared. Fear made it worse. So no fear today. Just healing! :-)

[WillowDove40]

@fancyladydiane1 I'm glad to be back and to be of help to you. I love you too!! xoxo

[fancyladydiane1]

Ohh im so glad yur back hunnie,yur soo brave hun & inspiring,even though ive starting the med ,yur videos help me,you keep me reminded to always work on positive thinking,i hope we can get this under control hunnie,im so glad yur feeling better hunn ohh yur soo sweet hunthank youuu for being here for me,thankk u so much sweetie,i love ypuuu yes im going too hunnie,luv youuXOxo

[elizawhat]

@WillowDove40 Autoimmune diseases are SO much fun. *sarcasm* I never realized random food allergies could occur, but yeah, that makes sense. Other than that and the eye bleeding and swelling, we have a lot of similar symptoms.

Regarding the skin sensitivity... Do you get weird "patches" that hurt but there's nothing there? It kind of hurts like a burn to the touch?

[WillowDove40]

@girlytubegirl Thank you. It's good to be back. :-)

[girlytubegirl]

glad you are well, reflecting the all love and light right back at you. its good to see you