My MS Journey: Optic Neuritis
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@opticneuritis Thank you for your lovely comment. That's a long time to live with ON and I am sure it frustrating. I am having vision problems at the moment and it is hard as it is so limiting on what I do (eg driving). Thanks for your prayers. Kerri
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@maricelabarajas77 Hi :) This video was a year ago and the ON seemed to improve over the following couple of months. I did have treatment for CCSVI in March and had a tremendous improvement in vision following that. I was diagnosed Aug 2008 but have probably had MS at least the decade prior. Kerri
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Thank you so much for these encouraging words. I wish they could make the medicine without the dangerous side effects so there would be no need to come off them.
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Hi Janet, Congratulations on the house move! Hope you are unpacked and settled in now - I can just imagine how exhausting that would be! Thinking of you and hoping you can find some rest. Kerrixo
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Firstly can I say, I am so sorry to hear about your diagnosis. Secondly, the most important thing you can know is - you are not alone :o) If you journey around Youtube you'll find many of us willing to share similar experiences and offer support. Any questions feel free to ask. So lovely for you to stop by my vid. Kerri
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I'm so sorry Little one!
Hope you feel better soon!
Hugs, NiCee
NiCeeGlover 1 year ago
@NiCeeGlover Hi NiCee - feeling heaps better, see the latest vid on my channel :)
kezzcass 1 year ago
I've been diagnosed with Optic Neuritis as well, but so far the N.O. believes I'm in the lower risk level of MS. He says I need another MRI (which I hate) and another exam in 6 months. I'm not sure if I have MS, but I can say with certainty that while the doctor had me on Prednizone I felt great and energetic. I didn't have back pain or foot pain or leg pains. I miss it.
misternef 2 years ago
I do know someone that had ON once and they thought she had MS but she never had another episode - benign MS. She is now in her 60s and she had the ON in her 30s. I hope this is the case for you. MRI's are not real fun - but I think worth having as a review for peace of mind. Yeah the steriods feel great when you are on them but for me the come down is terrible! Keep well, Kerri
kezzcass 2 years ago