Madison's Story: Living with Cystic Fibrosis 2008
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Uploaded by ashleync2003 on Apr 23, 2008
A video about Madison's life thus far, and what it is like for her, living with Cystic Fibrosis (CF). It shows her daily regimine, all of the medications she takes, treatments she has to endure, and all of the set backs she has seen. She has been through more in three years, than some people go through in a lifetime. This was created as a diary type video, so Madison could watch them from each year, and see how far she will have hopefully come in the years ahead. We are now using it as an awarenesss video, and it has a powerful message and a little girl you can't help but fall in love with. Our goal is to educate everyone on CF, and hopefully one day... find a cure
Uploader Comments (ashleync2003)
All Comments (35)
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I made a video that is on the front page of my channel called 'ditalydo' that is of my nine year OLD WITH C/F SHE OIS VERY EXCITED TO FIND THAT THERE ARE OTHERS ON HERE WITH HER DISEASE SHE HAS NEVER KNOWN ANYONE WITH IT SO PLZ SUBSCRIBE TO ME SO SHE CAN CONVERSE WITH YOU ALL OR AT LEAST ENJOY YOUR VIDEOS THANK YOU...DEANNA AND SADIE
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i have cystic fibrosis and i'm 20 years old.. i have the pseudamonus bacteria and i just got over pnemonia.. up until a couple months ago my cf never effected my lungs, just my digestive system and i developed diabetes.. i'm also in liver failure.. i have one of the very rarest type of cf.. hope ur daughter is doing well.. good luck,
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"Great" doctor you had! Great video!!! :)
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Great Video, I hope it was therapeutic for you. Even though I know your daily life is challenging. Love helps you through it all
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@SarahJean1976 You are so bitter. I am 25 years old with CF. How can you not be "reminded" of it at the end of the day unless you aren't doing any treatments at all and are "forgetting about it". Do you really even have CF? That little girl would be proud to have this video, it's a part of her LIFE and a way to show people what CF really does to me and the rest of those who TRULY have it! Go seek therapy and stop denying your CF...embrace it.
DJLava85 1 year ago
@DJLava85 I knew after our first attempt to do some outreach and educate people that just saying what she went through wasnt enough. We had to show people then they listened. Madison knows what shes went through and at five she has a clear understanding of what she goes through now. We learn about things as they come. I promised I would always be honest with her and help her understand what was happening. Her baby brother has failed 2 sweat tests and she has been right there telling him what...
ashleync2003 1 year ago
@DJLava85 she went through and how hard it was sometimes but how she pulled through it. I teach her to see and understand negative things, and how to always pull something positive out. God chose her as he choses everyone... and he knew that she was going to be a fighter. I just want people to see and understand that CF needs recognition, and MAdison's Hope allows her to feel like she is connected to others through her fight and her desire to help others I do what I do for all CF angels & family
ashleync2003 1 year ago
@DJLava85 and DJ I appreciate you standing up... This was not meant to depress my child.. She deals with that already and until I started to explain to her that she wasnt wierd of different.. That God took extra time on her and knew how strong she would be and how special she is, she hated CF. Now it is a way of life for her. She sat with me and helped pick out pictures and told me what she didnt like about the journey thus far and what she did like. She is proud of her video because it
ashleync2003 1 year ago
@ashleync2003 got peoples attention and people learned... Through her struggles, accomplishments and words... he smile.. they learned... A community was educated and its not just about money its also about educating people... Thank you all for the comments! I will be posting more videos soon! Hope you will come back and see thema nd see where shes at now! God bless you all!
ashleync2003 1 year ago