we can be heros for just one day

we can be heros is a short film about those living with a gentic disorder called neurofibromatois the clip explaines true and false facts and the fact that it may not be cured but we are hoping for it more then 700 people on my list on facebook are living with this and we have the same thoughts we thrive on it and learn from it we have NF but it dose not have us

Category:

Education

Tags:

• neurofibromatosis

[bullbrooke]

i just visited the genetics Center of WA they told me heaps of stuff about NF that i didn't know about :)

[hayleypetamarrs]

@bullbrooke that so awsome i made most of this from my head sometimes i get it from the net cause i need correct infomation im going to be doing more soon too thanks for your comment

[bullbrooke]

@hayleypetamarrs the doctor told me to stay away from the internet, because it may scare you and it always shows the bad stuff about NF. :)

[hayleypetamarrs]

@bullbrooke yeh i agree it dose show stuff that can be bad i olny have one main site i go to i have friends on fb with nf so many amazing people we just want to be heard i really dont talk about nf as much but i do as much as im willing to veery so often i will post a video up of friends on fb with it and they love to spead awareness

[12Missmimmy12]

I have NF 1 I was diagnosed at 4 years old. I am the only one in my family that has it.. I would like to add you to my facebook.. :)