CCSVI & MS - The day after the open forum..MOD

Kudos to Maria MSGirlonline for her 3 part series on the Liberation War.
The open forum link : http://www.ctv.ca/servlet/ArticleNews/story/CTVNews/20100409/w5_liberation_up...
Just talking about some key points in the open forum.
Please remember Dr. Zamboni's stance.
1) Keep taking your medications
1a) The only proven safe and effective intervention is venoplasty. Safety has not been established in stents.
2) Get the procedure in a clinical trial
3) If you choose to get the procedure done outside of a clinical trial, please follow up with a neurologist to track your progress and join a registry of post intervention patients.
4) Health care providers should consider the Liberation procedure for progressive MS patients on the grounds of compassion
5) Dr. Zamboni's research is published. YouTube MS'ers, facebook groups, and bloggers can speculate, but the scientific community and reporters must not confuse HIS work with the internet BUZZ (that is us!) about this procedure.
Overall, I was very impressed with Dr. Zed's passion and conviction that his research is on to something BIG in changing the face of MS.
God bless, Keep the Faith, and for God's sake KEEP TRUCKIN'
Irish.

Category:

People & Blogs

Tags:

• Zamboni
• Zivadinov
• Liberation Procedure
• open forum

[notapplicable66]

Another thing ponder......If CCSVI is caused from twisted or clogged veins leading from the brain to the heart where the blood is not flowing properly and too much blood stays in the brain. (Which becomes toxic.) Then that would mean not enough blood is flowing or circulating back to the heart. Then that should mean that every person with CCSVI must have a weak heart or have some sort of heart problem. I know that my heart isn't normal. And that was even before I was diagnosed with MS.

[irishbear76]

@notapplicable66

You are right. It would cause the blood to thicken waiting to get pumped through the body. The blood would thicken possible causing some cardiomyopathy.

This also happens with sleep apnea which makes me think I know where the 10% wihout CCSVI but MS are coming from. Of course, I have no means to do any clinical trials but I have some staggering anecdotal evidence from talking to people across the world.

God bless, brother, and keep turning over stones.

[notapplicable66]

Things to ponder....They say 25% of people with CCSVI do not have MS. My answer to that is, I believe that these 25% with CCSVI their immune system is not as strong or as overactive as the people with CCSVI who have MS. They say only 55% of people of people who have been diagnosed with MS have CCSVI. So what about the other 45% who don't? My answer to that is, do you know how many people who have been misdiagnosed with MS? A lot of different illnesses mimic MS symptoms.

[irishbear76]

@notapplicable66

These numbers are rubbish. Dr. Zivadinav admitted that the Buffalo Study did not use the proper technique. That is the problem with the numbers. EVERY person who has used the Zamboni protocol (catheter-led interventional venogram)

The REAL NUMBER is closer to 90% of MS'ers have CCSVI. (THe 10% I would like to have sleep studied but one thing at a time :)

The participants had CDMS. Clinically defined no chance for misdiagnosis.

[kkkkkkatherine]

Thank you Mark for all your videos, research...!

Just because MS Patients may need Angioplasty this debate arises! Stenting IS NOT a NEW uncharted territory....

Renal Dialysis Patients GET Angioplasty of Veins and Arteries...no big deal!

Why can't MS pts with stenosis of Jugulars,etc GET Liberation Treatment!!

Please research...

radiologyinfo --- angioplasty

I have renewed hope to approach Local ITs --

[irishbear76]

@kkkkkkatherine

I mostly wish that a stent was developed specifically for the iJ and AZY veins instead of using stents designed for arteries.

The actual procedure of placing stents and doing angioplasty is well established and safe as any other invasive procedure.

[derekdadey1]

Call CCSVI Clinic; (404)461-9560 to schedule your screening today in Fargo, ND or email us at apply@ccsviclinic.ca. Yes, get screened within the US. No waiting….find out more at ccsviclinic.ca

[notapplicable66]

I recently noticed when I quit taking vitamin D regularly like I have been during the last few years that I just didn't feel right and I noticed I was more aware of my MS and the symptoms that I carry with me daily.

[notapplicable66]

It's not surprising that the "anti-CCSVI groups", (is what I call them), would resort to false numbers to support their other misleading treatments or methods.

[notapplicable66]

Doctors knew for years that people with MS have too much iron in their brains. And for some strange reason they didn't think this was important. So it makes sense that there is something wrong in people with MS with blood drainage. Kinda like having a plugged up sink. Gee I wonder what would happen if you left your sink all plugged up. It would make a nice bacterial cesspool would it not? Imagine that going on in your brain. What do you think your immune system is going to do??? Attack!