Diana's fun fibro chat- "I don't believe you have fibromyalgia." "Thank you."

Hi. I'm Diana. I'm 38, and I have fibromyalgia. Folks say they find me "inspiring." Someone yesterday told me "I don't believe you have fibromyalgia." I guess I must be doing something right. I do have some crummy days with fibromyalgia, just like everyone else, but I have a lot of good days, too. I keep a written blog, (www.surfercouple.com), and a video blog, here on YouTube. I don't sell anything. My goal is simply to share information with other people who have fibromyalgia. I had symptoms of fibromyalgia all my life, but didn't know what the disease was, or what I had. (And, neither did the doctors, who diagnosed me with anything, and everything, EXCEPT for the correct diagnosis.) My fibromyalgia symptoms came on in a MAJOR way during my pregnancy with my son. Never felt so wretched in my life, except it wasn't normal pregnancy symptoms. Just horrid body aches and fatigue, and pain in my muscles. My ob-gyn told me I was "pyscho-somatic." (It was "all in my head.") After the birth of my son, it got even worse.

Anyway, I won't bore you with the whole tale here, but suffice it to say, two years and about 50 doctors visits later, I finally figured out ON MY OWN that I had fibromyalgia. (Thanks doc!) (Then, went to a rheumatologist to be "offiicially diagnosed" because you have to be "officially diagnosed" in order to "officially" have fibromyalgia.)

I tried all the normal treatments to fibromyalgia, and if you're at my website, you probably have discovered the same thing I did. They don't work. They'll suck your check book dry. They'll make Eli Lilly and Pfizer stockholders very happy. They'll make you sick, woozy and stoned with side effects. But, they won't help your fibromyalgia. Not in the long-term.

So, I started networking online with other people who had fibromyalgia. And, it was then that I found out about the Guai Protocol. It was so controversial that I had to give it a try.

I won't try to explain the Guai Protocol here, as there is plenty of information all over the Internet about it, as well on the Guai Support group, and I have a set of FAQs on my own website. So, the info is there if you want it. You can Wikipedia it, too.

But, I do find it very funny that people now don't believe that I have fibromyalgia. Well, hell's bells. I guess I found the right approach to treating this hellish disease after all, eh? Take that Eli Lilly and Pfizer! Sorry shareholders! You'll have to finance your Mercedes Benz, and Beamers off some other poor, ill person.

Category:

People & Blogs

Tags:

• fibromyalgia
• Guai
• Protocol

[ironbith]

LOL u r funny! I find myself hilarous! But others do not always agree. lol Oh I also wakeup with the headache and neck pain...........I did this morning.

[dianacwolf]

@ironbith I am now on my fifth year of the Guai Protocol, and I no longer wake up with headaches. So, it is by no means a fast protocol, but well, I must say it is nice not to have to take painkillers as soon as I get out of bed. I am trying to remember exactly when my morning headaches stopped. I guess it must have happened gradually, because I can't remember when I stopped taking morning painkillers. I just know I haven't had a morning headache in a very long time.

[ironbith]

LOL u r funny! I find myself hilarous! But others do not always agree. lol

[dianacwolf]

@ironbith If we can always laugh at ourselves, well, then we'll never run short of things to laugh at, eh? :)

[FallaciesDetective]

greetings!

I recently also diagnosed myself and the doctor agreed.

:P

:)

[dianacwolf]

@FallaciesDetective Hello! Yes, sometimes we do have to be our own detectives. The way medical insurance is set up right now, doctors only have a few minutes with us before they have to be off to the next patient. It is not very much time to diagnose a complex condition like fibromyalgia. So, we do need to be our own medical advocates. I am glad you we are able to find some answers. You will need to keep being proactive as you search for the best treatment that works best for you. -D.

[nahtyaa]

Real Latino brides are there rockmycity.info

[tamra1975]

@SisterSunnshine are you still seeing this doctor or did you get another?

[dianacwolf]

@faiskola Hello! Fish oil is OK if you are taking it as a food supplement. You cannot split open the caplets and rub it on your skin, but you probably weren't planning on doing that anyway. :) Sorry for the delay in answering your question. I just noticed it now. There is a terrific Guai Support Group, called "the GuaiGroup." Just Google the Guai Group, and you can sign up. It's free, and it is a great place to ask questions. Hope you are feeling better!

[ironbith]

Oh I also wakeup with the headache and neck pain...........I did this morning.