RSD/CRPS Video Diary #2- Swelling, colour change, etc in right leg
Uploader Comments (katesRSD2000)
All Comments (20)
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@emmazoey2 I've been suggested the spine treatment too; I went to a PPRC in Waltham masechusets and that helped my arm but after that it spread to my legs.
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Heeey, Im 14 and I am completely cured of RSD(:
I was diagnosed after my second ankle surgery and I tried nerve blocks,pain meds,spinal stimulaters and even comas.
It all made it even worse until I went to this treatment called INTERX it saved my life...literally. It started in my foot then moved to my whole ankle and foot and it was a pain of 9 out of 10 all the time. Please everyone just give this interx a try! I know it will help you! They have cured EVERY patient they have had! It's pain fr
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@emmazoey2 Yes it started in my left arm, its now right around behind my shoulders in my mouth . head, face, and rightg arm, i have to wear long sleeve tops most of the time, and sometimes cant go outside,and feel like i have eaten chillies, and yes color change, temp change too, loss of strength. Love XXX
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@mascot426 I always have to wear long pants, so I know what you mean. I think I have it in my face too. How does you CRPS act there? Sending love to you too!
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@manjushri2 my right , and also my mouth, lips, [face] head, neck, shoulders, chest ect. I never know what to expect from 1 day 2 the next, complex is right !!!It is very frustrating, and makes you feel like a freak, having to wear a jumper, or long sleeves in middle of summer !!Nobody but us sufferers know what it's like.And it's certainly not in our head, pain is a feeling , not a thought. Love to you all
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I understand your pain and frustration. I have RSD (CRPS) too and can't stand my life, or lack thereof. I am frustrated with doctors that don't really listen. The latest being pushed on me is a spinal cord stimulator, and I know my body would reject that. He changed my meds and I'm worse than before. I can only walk with crutches; how about you?
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CRPS
abc.net.au/catalyst/stories/26
21515.htm -
I think I accidentally found a cure for RSDS! Visit my new blog and find out what takes away the pain, doesn't cause side effects and may cure it! I live pain free when I use it...and it's nutrition based. See blog is under my username "isthisthecure4rsds" on w o r d p r e s s dot com.
In reply to TheChromeStallion- I know smoking is no good for me. I have quit for long periods at a time since getting my RSD (for roughly 6-12 months each time) but it's my constant struggle and lately I haven't been able to kick it, as much as I'd like to.
Mentally, I find it helps me deal with the pain, but I know that physically, it's making me worse.
Thanks for the kind comments. I wish you all the best of luck with your RSD journeys, too. xx
katesRSD2000 2 years ago
I'm going on 9 years, with it starting in my right hand and arm then spreading to my right leg and foot 3 years ago. Sorry to hear you're dealing with this, too.
katesRSD2000 2 years ago