After seeing the deterioration of her husband's health due to a rare neuromuscular disease, Spinal Bulbar Muscular Atrophy, a.k.a. Kennedy's Disease, Susanne Waite took action and in August 2000 formed the Kennedy's Disease Association (KDA). In the past ten years, the KDA has truly made a positive impact, including awarding $280,000 in research grants. They have also teamed closely with the National Institute of Health to provide information to aid potential clinical drug trials.
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