Hi Mindy, I tested positive for the JC virus and I stayed on Tysabri. Just had my 45th infusion. It's a tremendously personal decision but not everyone stops Tysabri at 24 months and/or if they test JCV positive. Tysabri has changed my life for the better, in a BIG way. It was a tough decision.
Always enjoy your sense of humor. And wonder what some of those techs really think - yea man I just thought the MRI tube would be a great place to practice the hokey-pokey! Take Care!
At least your smiling :) and you seem to be in good spirits! Why wait till the 24th infusion to be tested? Can folks be tested earlier? like at 12 months or every 3 months? I question the time line? they say (24 months) I feel they should test every 3 months! but that's just my thinking, and they could lose profits by doing that I guess. I love the slogan (Am a person not a profit)
You always seem to be on the bright side if life! (Monty Python) and remind me to be a better me. susan
LOVE your sense of humor and your videos. :)
TrinnyandSkye 3 months ago
Hi Mindy, I tested positive for the JC virus and I stayed on Tysabri. Just had my 45th infusion. It's a tremendously personal decision but not everyone stops Tysabri at 24 months and/or if they test JCV positive. Tysabri has changed my life for the better, in a BIG way. It was a tough decision.
TrinnyandSkye 3 months ago
Always enjoy your sense of humor. And wonder what some of those techs really think - yea man I just thought the MRI tube would be a great place to practice the hokey-pokey! Take Care!
88whynot 3 months ago
Love, love your attitude! Keep pushing Mindy!!
eternity222 3 months ago
At least your smiling :) and you seem to be in good spirits! Why wait till the 24th infusion to be tested? Can folks be tested earlier? like at 12 months or every 3 months? I question the time line? they say (24 months) I feel they should test every 3 months! but that's just my thinking, and they could lose profits by doing that I guess. I love the slogan (Am a person not a profit)
You always seem to be on the bright side if life! (Monty Python) and remind me to be a better me. susan
ThePennygirl 3 months ago
Love your videos! Especially when you say asshole!!! I was lmao! Hope your results are good!
SOMUCHMORETHANMS 3 months ago