Living with Multiple Sclerosis - Tysabri Q&A
Uploader Comments (laurenvparrott)
All Comments (24)
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Hello! I would look on Tysabri's website for the most up to date information. Everyone is different, but I started seeing results after my 3rd infuaion. The people who got PML got it after taking it for over a year. Good luck and keep me posted!
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I was wondering how to find out the numbers on Ty. Meaning at what stage of infusion do people typically see results and at what stage did the PML come for those who got it? Can you get PML on your first infusion?
Thanks for your videos! they help alot.
Starting Ty on monday 4/6/09 ...fingers crossed.
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No problem! I wish your daughter the very best!! I was 16 when my MS started, so please tell her that she is going to be just fine!! Stay positive and write to me anytime!!
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Thank you so much for this, my 16 year old daughter starts tysabri on Friday, your video was so positive and hopeful :o) THANK YOU!!!
Hello Lauren, you can not imagine how much you inspired me to hope and to fight. You helped me understand that desperation is just another stone that I have to remove from my way. Just like you, now I am trying Tysabri and it is going well. You inspired me to create a blog about MS and mostly about fighting MS. I hope you don't mind if I recomend your videos on my blog but I think that as many people as possible should get your message.
flore20ani 1 year ago
@flore20ani Hello! I am SO HAPPY this helped you!! I really want you to have hope, and to fight this disease!! I think creating a blog is going to help you more than you ever thought it could!! Please feel free to use my videos!! You are so sweet! I wish you the very best!!
laurenvparrott 1 year ago
Thank you for the video. It helps my family so much. I hope your MS "goes away" or at least does not progress. Best luck to you.
speng01 1 year ago
@speng01 Oh I'm so glad! Thank you! I hope your MS does not progress! Wishing you the best!
laurenvparrott 1 year ago
Hi Lauren
Thank you so much for doing this. Im going to be going on Tysabri in a couple months and have been very nervous about it. I'm 33 and was dx'd 6 years ago. Your videos have made me excited about going on this drug rather than very anxious about it. It is nice to see some one else on the younger side with this disease. Anyone I have ever met with MS has been much older and usually further along. So thank you. I admire you for being able to "be out of the closet" so to speak.
MsStayz 2 years ago
I'm so glad this video helped you! I actuallt started making these videos to meet someone else my age who had MS. I wish you the best of luck and please keep in touch!
laurenvparrott 2 years ago