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SME Carers Diary Day Four : Holding on to Hope

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Uploaded by on Oct 15, 2006

Exploring the reality of caring for someone with severe ME

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Howto & Style

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Uploader Comments (gregcrowhurst)

  • Keep up this wonderful work Greg. We all hope we get some relevant treatment and not just rehabilitation too.

    Best wishes to you both, Jas

  • Jas thank you so much.

    Greg

  • You're so right Greg, we mustn't lose hope. I wonder what the Gibson Enquiry will produce? I was very impressed with your presentation which I discovered on the internet. God bless you both, you are in my prayers. Nigel

  • Bless you too Nigel - thanks . You know Gibson could be so significant - is should be - let's hope.

    Greg

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  • I had a roommate in the mental hospital I was in 2009. He had the disease M.E and the psychiatrists forced heavy anti-psychotic drugs on him without his consent and he had no choice but to take them. They made him so much worse it was HORRENDOUS watching him suffer from what the psychiatrists were doing to him, I am only 22 and have witnessed the worst of the worst, they gave me a medication which I had to take and it made me throw up for 3 months giving me M.E as it destroyed my immune system.

  • I attended an ME seminar recently and for the first time I heard a very convincing argument as to the cause and subsequent TREATMENT of ME. The pieces of the bizarre jigsaw that is ME suddenly fit together. The cause has been identified as a toxic overload of the symathetic nervous system, in particular the hypothalamus and a faulty immune system. It is called the Perrin Technique. I strongly recommend you research this.

    Good Luck,

    Chris

  • Thinking of you both.

  • I sometimes think that the only hope for cfs sufferers is among the community of suffering, but my own doctor, Nick Avery, has the patience and the flexibility of mind to look at all options. I wish you well in your struggle to find the right help for your wife.

    Roger

  • Sorry to confuse you, Greg, I've just realised that I was logged in as my alter ego. I'm Ivor Tick for Lyme promotional stuff and Alfie Hall for the rest!!

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