Presley - Battle with Neonatal Lupus

Presley's first year
Update 5/5/08 - these events led to her spastic diplegic cerebral palsy and dystonia. Please watch the follow up video, click on "more videos from jennnnn5"

Category:

People & Blogs

Tags:

• neonatal
• lupus
• sle
• cns
• immune
• nicu
• dystonia
• Presley
• CP
• Sinemet
• l-dopa
• levodopa

[Gabbyhermy]

when he wont looks at people periphally. well i told him i would get a doctor to test it so i could show him he was wrong. I should have known better. He aced Human Anatomy and Physiology pretty much. Well the test came back posittive. I was heart broken and devistated told him and he was like Iknow.. and Im sorry. So it took 18 years and a best friend to find out I had lupus from the beginning. But its cool. Because I know that people love me and understand that bcause of pain Imight be grumpy

[Gabbyhermy]

December 2010 My friend during a school lunch noticed my hands were red and swelling he asked if i had been doing chemistry things and didnt get off the chemicals and i said no i just washed my hands. why? he responded by asking is i had been by any chemicals i responded with a "no,why?" That was when he asked me if i had anyone in my family had autoimmune problems i said "yeah my mom the doctors dont know if she has lupus or M.S." My best friend wouldnt move his eyes from my hands.

[julibeth1000]

Omg this made me so sad, bless her heart i found out my daughter has lupus 5 months ago she is only 9 years old if you find out more informaton please email me julibeth5858@yahoo.com i work in a companie call univera and they sell health product i start giving my daugther some of this natural product we will see what happend i hope it goes away

[333pinkitty]

her little smile is precious. I hope her life is filled with happiness..

[wwwkelly1]

guerreira!!!

[Penlady5]

Also got to me because this is my favorite song. Great choice! Bless you all.

[Penlady5]

I was born with lupus, it goes back at least 11 generations in our family. Mine didn't show on my skin, but as fever, mumps, and inflammation markers in blood tests. I'm sure Presley didn't move around much because she was in pain! Non use of muscles makes them weaker. There is a question in my mind of whether the lupus caused the cerebral palsy (yes its possible for lupus to attack the brain like every other organ and cause such diseases) instead of C.P. causing lupus. Really is heartbreaking.

[joywit]

Strength and grace is your greatest asset thank you for this reminder of the blessings we all Take for granted.

[Miaaa2012]

God bless you..this is the sad rest video I see I can't see no more..children with Lupus..