Tremor Action Network-Shaking the World

Someone you know has Tremor. Well known (living) people with Tremor include rockers Ozzy Osbourne and Mitch Ryder, golfer Tim Simpson, West Virginia Senator Robert Byrd, and retired Justice Sandra Day O'Connor. Tremor and related movement disorders afflict millions of adults, children and next generations, yet little is known about them. Tremor Action Network (www.tremoraction.org) has produced a patient information and neurology teaching video about four individuals with abnormal involuntary muscle movements and contractions that affect their daily life activities. The compelling video depicts the quality of life challenges that people face after the diagnosis of a movement disorder, with emphasis on the movement disorders Tremor and Cervical Dystonia.

http://www.tremoraction.org:80/

Category:

Howto & Style

Tags:

• tremor
• dystonia
• movement
• disorder
• health
• essential
• cervical

[robhagle]

ET is a life of Hell. There is noone to understand accept those who have it. Hang in there with me you guys. I have Suffered with it for over 35 years.

[nuclearforge3]

I have just finnally been diagnosed with ET after fallowing 4 generations back of this disease that has never had a name in our family! Its very hard to live with and being only 32 its hard to eccept esspecally when your friends make fun of you for it. Guess they aren't your friends anymore if they can't support you when your sick. Thank god for the net and hey guys its nice to know that we all have a common bond to bad it has to be this but at least we can carry each other through.

-Dawn

[nocysfinest4ever]

Thank you for posting this

[azthundercloud]

i had the dbs surgery in april. changed my world. no more ridiculing from people.

[trakat77]

I was diagnosed at age 30 and it progressed to both hands, arms and legs by the age of 34. The medications completely stole my quality of life. Bilateral DBS surgery was the best decision I ever made. I had subsequent corrective DBS surgeries when one of the leads failed, and again when a wire in the neck broke. It hasn't been easy, but I have so much life ahead of me & DBS was a blessing. I'm donating my brain to research one day..I hope others will consider this option. We need a cure.

[carol54149]

I have had it for 43 years not a day goes by where someone does mention it my high school years were hell

[dani1985]

I have ET since I was a little baby, began in the hands and now today I'm 23 soon 24 years old and now have in hands, head, legs. Just being worser with the time, there should really be more information out there about this so people could know. Thanks for postng this video

[AhLeeJi]

Im 15 years old. I have tremor since last year. (summer 2008). My doctor said, it is a progressive tremor. Please enjoy your life everyone. In the future, i may not be able to do the things i usually do (writing, drawing, many more) and the things i want to do (piano, draw). I decided to do all the things i can do now.

[bigbreadeaterellis]

i have this health problem since i was a young boy

it affects my hands and my head...my head twitches when i feel stressed or angry.

i can't begin to say how much this problem has affected me.

i reckon i'll die with this problem because

i don't have money to get the right treatment.

[rotesocken]

i have ET since i was 21, seen in the head. i am now 28 and have made progress with yoga and progressive muscle relaxation. surgery is not the only solution for everyone! please consider other cures...