Last IVIG! :D

I was diagnosed with an immune system defect on November 6, 2006 and underwent treatment until April 26, 2009 (I have another video from that time in treatment up as well).

I enjoyed 5 months in remission and off-treatment, but relapsed on October 7, 2009. I had a port (like a permanent IV line) placed on October 17, 2009 and began receiving IVIG every 4 weeks. (IVIG is a type of immune system replacement therapy.)

In this video I walk you through an afternoon of IVIG, which I received at the hospital every 4 weeks from October 17, 2009 - March 11, 2010.

Thankfully, this was once again my LAST treatment! I will undergo extensive immune system testing this summer, and then in August/September 2010, we will be able to determine if I've beat immune deficiency for good. :)

Category:

People & Blogs

Tags:

• immune
• deficiency
• immunodeficiency
• IVIG
• system
• intravenous
• IgG

[katprincess929]

I'm 13 and I have voltage gated potassium channel auto-immunity, disautonomia, hashimotos (I'm spelling it wrong), and a HUGE mystery disease causing all of above diseases and lots of symptoms. the and mainly gastric issues. I am having my 3rd treatment near v-day.

[tumbletime77]

Im 13 with vasculitis and parsplanitis i ive been on four different chemos, but none have taken away the disease into remission so im going for ivig soon, maybe ill make a video when im done!! I dont know you but im happy to see im not the only one :)

[tumbletime77]

Im 13 and i have an immune s

[demopoulosnow]

A dear friend of mine is going through the same thing and I know how expensive this treatment can get. Our biggest fear is if the insurance will cover the cost eachmonth. At any rate I felt compelled to wish you well. You're very brave and upbeat. Kudos to you and the nurses who care for U.

Keep On Keeping On !

:)

[HiccupDancer]

I was on IVIG for a little over six years (ages 14-21ish), and I trialed off at the end of last summer. So far I've been relatively healthy, but I've had a few more infections in the last couple of months, so I have to get more labs and whatnot to make sure my levels are still in a good range and my immune system is responding and making antibodies correctly.

I hope you're doing well and that you've successfully stayed off too!

[reba233100]

You are soooo cute. I also get IVIG's sadly there has nerver been a last one yet. :( hopfuly someday. I get them to help my immune system which of course i know you all ready knew that i didnt have to tell ya that heehee. I'm a heart transplant so i know how it feels to get them and good luck with the best of health and that you never have to get another IVIG ever again! :)

[tinmanlover1994]

@tinmanlover1994 well maybe 7 years with my silly nuries i miss them love u guys xoxoxoxo

[tinmanlover1994]

how about 9 years doing that and see what happens with my silly nuries that look care of my ivig

[tinmanlover1994]

that was funny when the nurie gave you a lilpop and wow done at 9 at night i did my ivigs in the morring and got done at noon time or at 2pm