Bad beyond Belief
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@Dawnten *big hug* Sorry you're having such a horrid time. I am so grateful, because I have a loving family who 'gets it'. (and I am not as ill... lost my job, and almost housebound, but still... I know it could be so much worse, and my heart goes out to you.)
marjae87 8 months ago
You are so blessed to have such a loving husband. Last week I came out of the dr office who told me my kidneys were not functioning properly. Upon telling my husband he screamed at me in the parking lot that "FU!!" He wanted a divorce and was going to cut my insurance off. Instead of holding my hand he yelled at me all the way home telling me to go back 3000 miles where I came from knowing I can barely get out of bed and have no money to move let alone any family to go to. You are so blessed. x
dawnten 8 months ago
I had a roommate in the mental hospital I was in 2009. He had the disease M.E and the psychiatrists forced heavy anti-psychotic drugs on him without his consent and he had no choice but to take them. They made him so much worse it was HORRENDOUS watching him suffer from what the psychiatrists were doing to him, I am only 22 and have witnessed the worst of the worst, they gave me a medication which I had to take and it made me throw up for 3 months giving me M.E as it destroyed my immune system.
835283 11 months ago
I had a friend who was my roommate in the mental hospital I was in. I got ME from a medication they gave me that made me throw up for 3 months in there and said I had to take it. Anyway about my friend he had M.E and was sectioned and they gave him drugs without his consent and he had no choice but to take them. He got so much worse from the anti-psychotic drugs they were forcing onto him, I will never forget him and what the psychiatrists did to him, that memory is with me for life!
835283 11 months ago
NICE are also killing people with Cancer/M.S.
It's a Government policy to neglect to save money, and sadly, us ME patients are just another patient group left to rot.
Great video - balanced, calm and informed.
luminescentfeeling 4 years ago
LOL!
luminescentfeeling 4 years ago
Yea I just read the NICE guidlines myself, it's a bunch of horseshit
RaiseCFSawareness 4 years ago
Thanks again for continuing your fight for justice for people with ME.I see that theoneclickgroup dot co dot uk are taking legal action against NICE via a judicial review. They need raise pledges of £20,000 currently raised £15,654 (nov 6th 2007)
kaazoom 4 years ago
I keep hoping that someone 'official' somewhere will really want to find out the real physical cause of all our suffering. It seems to be going in the other direction. I can see many of us getting worse if/when forced into 'cures' that do not help. Perhaps then they'll realise that we have physical causes not mumbo jumbo 'mental issues'
oldshoremore 4 years ago
Hi Greg and Linda, Thanks for highlighting this, I'd not been aware of final publication. This is a disgraceful situation and it makes one wonder how these men in grey suits sleep at night. God bless, Nigel
ivortick 4 years ago