I Got Out of Bed with Dysautonomia - July 11, 2009, 02:12 PM
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Uploader Comments (DysautonomiaMD)
Top Comments
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I find it hard to get thru the day also and feel your pain and discomfort. My prayers are with you. DysautonomiaMD, is there a site/url you can direct me to for research purposes? Thank you for sharing and God Bless
2 years ago 30
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Thank you so much for spreading awareness.. I have POTS.. I am 51... what is the cure????
2 years ago 23
All Comments (37)
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@DysautonomiaMD: yes, thank God! It is amazing to see how much better I am...especially on a 'good' day! LoLv.
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@TJae1 : yes, we can do a swap. Resting and napping today. Mucho cansado. very tired. LoLv and Happy Thanksgiving to you and your family.
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@DysautonomiaMD ~ left a text for the pin ~ pls confirm ~ mayb we can do a christmas gift swap this yr ~ yes ?
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@TJae1 Thanks. I am overtired after my father's funeral, and am drained of energy. Hoping to see some people I love tomorrow, and that is sure to make me feel better :-). Thanks for your friendship and your patience. LoLv.
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poor marge ~ U've come such a long way ~ 1 thes 5:23
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@maribelcaban : I'm sorry about your chest pain & I wish so much, that I could be of help. Please send me a PM, ok? I look forward to getting to know you better :-). LoLv & if you can, just limit yourself to 5 min for starters, on the computer. Don't want you to be dizzy. Thank you for all your notes. You are a sweetie. LoLv.
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@maribelcaban : I have to go out of state to find huge family that loves me....I am blessed with a couple of nearby relatives, but I almost wish I could move...just to be surrounded by love & have our daughter grow up with cousins. LoLv. You are my sister now, so POOF! you can count on me to be your friend & love you as much as I can, ok? LoLv.
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@maribelcaban : hope you find a good doctor. PM me & tell me where you live, Ok? LoLv & never give up, ok?
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Thank you so much for your videos and your efforts to bring about awareness in the medical community. My first cardiologist blamed all my symptoms on frequent ventricular bigeminy, couplets, and mitral valve prolapse with mild-moderate regurgitation. He said that those things cannot account for all my symptoms, including near-syncope and syncope, so he finally referred me on to a world renowned expert in ANS dysfunction in the same practice. I would love to talk more with you at some point.
lawgrad06 8 months ago
@lawgrad06 : Thank God you have access to an ANS expert...you are truly blessed. I'm here and there when I can, and I try to answer all my mail every day...so please do keep in touch, ok? LoLv.
DysautonomiaMD 8 months ago