EDS Awareness - The personal side of Ehlers-Danlos Syndrome

Did you know...Ehlers-Danlos Sydrome (EDS) can affect as many as 1 in 5,000 people.

Did you know...there are 7 types of EDS with Hypermobility, Classic, and Vascular being the most common.

Did you know...Classic EDS is characterized by elastic, soft, and doughy skin, unusual scarring and loose joints.


Did you know...Hypermobility EDS is characterized by loose joints and chronic joint pain.


Did you know...People with Vascular EDS are predisposed to rupture blood vessels and hollow organs, joint laxity, easy bruising, abnormal wound healing, and translucency of skin.


Did you know...EDS research is being done by Dr. Hal Dietz at Johns Hopkins. Rarely are people given the opportunity to directly fund a treatment for such a devastating disease--a disease that has no cure or treatment.


For more information about EDS or to make a donation, go to http://www.ehlersdanlosnetwork.org or http://www.ednf.org/ today.

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• pain
• chronic pain
• debilitating
• debilitating pain
• disabled
• disabling pain
• Ehlers-Danlos
• Ehlers-Danlos Syndrome
• EDNF
• EDSNC
• EDS Nework CARES
• EDS
• stretch
• double jointed
• fibromyalgia
• FMS
• fibro
• hypermobility
• rheumy
• rheumotologist
• geneticist
• joints
• collagen
• connective tissue
• skin
• muscles
• ligaments
• fragile skin
• unstable joints
• faulty collagen
• connective tissue disorder
• medical doctor
• May

[77095070]

Greetings from another type 3 sufferer... I am 53 and was not diagnosed until i was 50 and brought it to their attention.

I wish you the best! hugs...

[mystery8881]

I wonder if Fibromyalgia is the correct diagnosis when you also have heart problems... it seems to me that people with EDS on the other hand have those.. Even a trip to the grocery store makes me feel like I'm about to have a heart attack, my heart rate probably goes up to 150. How can I get the doctors to check for EDS? If I say that I suspect I have it, they're just gonna laugh and not care... My muscles are stiff but I feel my joints are weird.