Why Some Labels Are Necessary

An attempt to explain the issue of Invisible Diseases (physical, mental, emotional, ETC.) more "successfully" to people who don't understand them. It's about quality of life, and making the best of what we've got.... healthy or sick, rich or poor, etc.!

We all mourn what we lose in life, be it health or anything else that matters to us. But we can use our negative experiences and turn them into positive ones! It takes time, work, patience, perseverance, support, trial & error, and desire.... but the destination is well worth the journey, and the journey itself is rewarding!

Category:

Nonprofits & Activism

Tags:

• chronic
• mental
• physical
• illness
• disorder
• health
• pain
• fatigue
• schizoaffective
• bipolar
• fibromyalgia
• CFS
• social
• anxiety
• panic
• communication
• understanding
• community
• society
• stigma

[TheMouthonWheels]

Hello Kat :) I was looking for 'The Spoon Theory' and found your video (I have Spina Bifida and it helped me so much when I found it about a year ago). My mum had ME and I think if YOU feel ill then weather it's psychosomatic or not really doesn't come into it. Feeling like **** is still a fact!

Oh, yes and you have a new subscriber. Take care ;-)

[Katatawnic]

Very true, but I do still intend on addressing the differences between physiological and psychosomatic one of these days, because there is a lot of confusion about the two; especially the latter. This really only came up because of this confusion, the most common of course being "all in your head".... and as the discussion turned to a heated debate, "psychosomatic" was (wrongly) used left and right; quite insultingly, at that. One of those "you had to be there" things. ;)

Subbed back atcha! :)

[TheBaByG]

I saw it instantly, because I thought

"She does the same things I do... hmmm.."

And I were right and I KNOW what you say, when you say you suffer more intense. I haven't been able to put words to explain it before. Those will work just fine, so hope I can barrow them.

Keep it up!

I needed this today. You know..

the little (and huge) reminders that SOMEONE really REALLY understands you, and get how messed up it is, and how conflicting it is to look well and be on the green mile, so to say...

[Katatawnic]

You can borrow the words any time, that's why I put them out there - explaining and understanding ;)

See? THIS is why I refuse to quit when the trolls start getting to me (and actually just yesterday I wanted to quit, but the video and its comment thread on which we "met" reminded me why I post these videos).... we all need understanding, support, and just perhaps a smile from another person.

"On the green mile".... can I borrow that analogy? I love it! :)

~~ Kat ~~

[TheBaByG]

Sure, barrow away!

=)

I have planned to make some more vids about these things,

and now I think I got the inspiration I needed to continue my "life" series.

I think we understand eachother.

Both ways.

And that's very sad (Cuz you don't really want anyone to understand, as that means they have been thru it themselves), and (In a selfish and needed way) very good too.

[Katatawnic]

Oh yes, I sooo know what you mean RE: understanding, and how it's "good" and "bad" and why!

[UcanbeGOD]

Truly stunning lady. Beautiful.

[DrfeelgoodEH]

Just love and learn so much with your videos

[wrigka08]

Hey Kat,

Psychosomatic VS psychological, good question. What do you think would happen if labels did not exist?

I like your thoughts though, they are very intelligently constructed and very informed, i wonder if you might like to look up some peer reviewed articles... I think someone such as yourself would find them to be very helpful in seeking an explanation for the various questions you pose in your youtube discussions :)

[lazyperfectionist1]

"I'm diagnosing you with (label needed), for which I am prescribing (label needed)."

[kerrileewolf]

i have bi-polar, but it can't be seen in the same way as a broken arm can.... so it's hard 2 get people 2 understand and allow. At least a 'label' allows some form of help! I totally know what you're saying. Thanx 4 highlighting this.

Thank heaven that I was diagnosed after 10 years of hell.

[DollyAndTheBlackDog]

Wow I loved this video, such unique perspective... :)

[soymiguelalejandro23]

excellent work mami! are you a therapist or just like me a student and a well informed consumer.

excellent excellent - thanks thanks thanks a million! I have never really heard it explained quite this way! amazing. I live w/schizoaffective disorder and I am learning more about bipolar disorder as my best friend who recently came out to me about his disorder. so I figure if I learn more about it I can help him by understanding a lil more about what he is going through and be a better friend.

[ll1816]

Oh Kat, thank you so much for making this wonderful video. The very intelligent way that you have explained what it is like and the need for labeling for those with invisible illnesses is so clear and precise. I wish that many of the friends that I lost when I got sick had seen this video. Having to live daily with Fibro, CFS, depression and all the other symtoms are hard enough without support and understanding. Your video was so informative and well made...thank you!