Infantile Spasms Miracle

This is a video telling the story of our son Andrew, who was diagnosed with Infantile Spasms just short of 6 months old. He was healed by the hand of God through treatment with a drug called ACTH. We are posting this because when we did research about this condition, we saw nothing that offered us much hope.

If your child is having spasms similar to what you see here, please take him or her to a pediatric neurologist RIGHT NOW. The spasms themselves are cause by chaotic brain activity that actually causes brain damage. The longer it goes on, the more damage will be done. Don't take no for an answer. Demand an EEG, which should show a pattern of brain waves called hypsarrhythmia. Ours was not caused by an underlying brain malformation or chromosomal disorder, so that weighed in Drew's favor, but early treatment can only help. I repeat, if your child is showing these symptoms, video tape it and take it to your Ped. or directly to a Ped. Neurologist or even the Emergency Room and don't take no for an answer. You must advocate for your child.

Good treatments are available and God still does miracles. Do not lose hope!

Category:

People & Blogs

Tags:

• Infantile
• Spasms
• Seizures
• Infant
• West
• Syndrome
• Baby
• Shiver
• Head
• Bob
• ACTH
• Topomax

[ladyhonda1]

7/22/10 My two year old son has started having these same spasms a month ago. In 2009 he was deathly ill from immunization reactions. he went into cardiac arrest and was resuscitated a minimum of 6 times. The doctor warned us he might be susceptible to seizures. God IS GREAT because even though he is having seizures for now, he has learned to sit up, crawl, and walk again.

[eshier365]

@ladyhonda1 He is indeed good. Glad to hear your son is progressing well. How are things going with the spasms?

[vostergarza]

@eshier365- i misunderstood you, i thought you mentioned the "spasms" were causing damage to the brain- not the medication. ahhhh!! this is all a huge learning curve for us, just glad they didnt find a problem with her brain...? have to keep hope

[eshier365]

@vostergarza No...to my knowledge it is the spasms themselves and not the meds that cause brain damage. The meds have different side effects, though.

How is your daughter?

[vostergarza]

my daughter is having the same spasms, and was diagnosed yesterday with IS, after getting her MRI today, the neurologist says this is NOT causing damage to the brain, she is now on prednisolone and we are home, but she is still having the spasms. we are afraid they are causing damage to the brain, but per the neurologist, it is NOT. do you know if we should take his word?

[eshier365]

@vostergarza

I, of couse, cannot speak to your situation. Prednisolone was not part of Drew's treatment, so I am unfamiliar with it. I am sure you can understand why I am hesitant to offer anything that might seem like medical advice. Our doctor, who we trust implicitly, told us the spasms also cause damage to the brain. If you are unsure about what your neurologist has told you or prescribed, I think you should get a second opinion. It cannot hurt. You are your daughter's advocate.

[adaywid]

@eshier365

my baby girl has same thing but i want ask about medicine what the said effect .i am so sad what i do now

[Ladietmeyer]

I can't watch this without tears in my eyes! We, too, are experiencing a miracle with our daughter, 3 yrs old, who underwent a 2nd brain surgery (a hemispherectomy) in July. She's now almost 4 months seizure free, having battled IS since 4 months of age. The seizures have left her w/ severe disabilities, but since her surgery, we are amazed at the things she is learning! We have felt God's unending presence during this LONG journey, and we praise Him for each day that passes without a seizure! 

[XDinexitaXD]

This is so, so beutiful. the ending made me cry. I wish to listen to that by our baby girl. Our little girl is 3 and a half years old and is still struggling a lot with west syndrome. We pray everyday for a miracle and God has given us one : being able to live with her. But we want one that will cure her forever. She doesnt' deserve any of this. She barely walks or speaks. this is not fair at all. Bless your baby boy! Thank God he's healthy <33

[registeredscs]

Thank you for sharing this video.  Our son was diagnosed this past Saturday, on his 4 month birthday, with infantile spasm. Now it all makes sense what we have observed with him before now. The plan is to start him on ACTH pending clearance by the doctors.

[dikeledij]

my son has been having spasms since a month he was born , he was on ACTH,cortozone , prednizone and epilim , he still had the spasms and was irritable , was huge from ACTH . now he is 23 months and has stopped the spasms ,its been a month now ,i am thankful to God , i pray it remains that way so that he can start developing more quicker cause he cant hold his head and cant sit yet . thanks for the video

[19afanasyuk]

THANK GOD!!!!

[zsazsaelenismommy]

This video was beyond inspirational. My daughter was diagnosed with cryogenic IS one month ago today. She's been on ACTH and after just 2 of treatment her EEG showed zero seizure. Several nurses her paediatrician and physical therapist all have been shocked at how well she looks. "doesn't look or act like an IS baby" We thank God everday

[ladyhonda1]

@blueeyeassasin Our son was diagnosed with chicken pox shortly after receiving the vaccine. Additionally, a fluid filled sore ( common with chicken pox) was directly linked to his vaccine through a DNA test done by the pediatrician. His immune system was so low the weakened viruses in the other vaccines were able to gain strength. He contracted mumps Measles, and Rubella. Liver enzymes count was off the chart ( from his Hep shot), encephalitis set in after the chicken pox.

[blueeyeassasin]

@ladyhonda1 how did you know he had an immunization reaction?