"BERNADETTE" - Trailer #2 - LIVING W CMT - CHARCOT MARIE TOOTH

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Uploaded by on Jul 6, 2011

An upcoming documentary about living with CMT. Bernadette was "born with the biggest disease no one has ever heard of." From Run Amuck Productions, LLC.

**This film is currently still in production.**

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  • They have not actually diagonised with CMT but close, dont know why:

  • Believe it or not CMT has been around for decades. I'm 50 years old and this disease hit me over 35 years ago. My youngest daughter is 23 and her progression is worse then mine. This awful disease was passed down through a gene my mother carried. I drop drinks all the time, I've got afo's to help me walk and yes i still fall, how I haven't broken every bone in my body yet I don't no. The pain sometimes is ungodly to deal with. I wish you well.

  • Keep Me Posted and tell me how I can help. My son was diagnosed with Dejerine-Spttas.

  • so touching.my prayers are sent!!!

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