My Rachel is walking!
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Buddys been doing great till about 2 months ago and he started limping, I don't think he has scoli I think something is wrong with the tendons in his leg, it's drawing up. I am his Grama and he lives with me. He might talk someday but not yet, have you seen the vids I made of him? He wash's dish's and loves to play his guitar and be silly, loves having his picture taken. He's the joy of my life as I'm sure Rachel is yours..
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she is adorable. cute video, and what a wonderful Thing to show to the world.
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We are not sure yet.. My Dr. thinks CHARGE syndrome or Kabuki Syndrome...
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What syndrome does Rachael have? Can anyone post that syndrome please.....
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she's walking great, Buddy didn't start walking till he was 6, he's 9 now and starting to have problems walking, they think he has scoliosis..
TheRealFlowerGirl 3 years ago
Wow!!! Which syndrome does Buddy have? Its so scary~
jessekalyn 3 years ago
Buddy has Rubinstein Taybi Syndrome also, he's 9 now and still non verbal, and now he's having problems walking again, we are on our way to Shriners next month they think he hs scoliosis but there is also somethig very wrong with his left leg.. How's Rachel doing?
TheRealFlowerGirl 3 years ago
Rachel is doing great!!! She just turned 4, and runs now.. Quite delayed and non-verbal, but in the past month she is really working on her speach, and has about 10words.. I did not realize they could get scoliosis.. I try not to read to much into findings, as they don't happen in every case. I say deal with it when it happens. Maybe I should look up the findings, eeeeecks. Canadians, are known for being too layed back, lol...
jessekalyn 3 years ago
So, on Oct 10th 2007 we found out that she does have RTS after all. You were all right on!
jessekalyn 4 years ago
We would like to say hi the the RTS group... Your back again eh? Claiming her as your own.. Your all to cute and such a awesome group! Maybe next week, we will join the listserve again.. We were members back in 05
jessekalyn 4 years ago