Contortion, Double-Jointed, Hypermobile = Ehlers-Danlos?

Many people who can do tricks with their joints or contortion, people who are double-jointed or hypermobile may actually have undiagnosed Ehlers-Danlos Syndrome. Please go to www.ednf.org for more information.

[Always check with your doctor - my posts should be considered my informed personal opinion which does not necessarily reflect the official position of the EDNF or any other organization or person concerned with Ehlers-Danlos Syndrome.]

Category:

People & Blogs

Tags:

• EDS
• ehlers
• danlos
• EDNF
• yomags
• double-jointed
• hypermobile
• double
• jointed
• hypermobility
• fibromyalgia
• CFS
• contortion

[YoMags]

HEDS has the same definition as HMS and was once "classified" as EDS Type III - now it's Hypermobile Type. You don't have to dislocate all the time or completely to qualify as HEDS - 5 of 9 is a positive Beighton Scale if I remember correctly - and that's just if your joints sublux past a set point of "normal" range-of-motion. My joints mostly sublux, not fully dislocate - but all are looser during "my time of the month" - apparently estrogen exacerbates our "looseness."

[Rekisum]

"When i do tricks, it never hurts"... well... not now maybe... but it will, and the more you can do these tricks and the more you do it, the more you can get to suffer. Physical exercise... training your body can minimise the pain and the symptoms... don't do these tricks... it's not healthy.

And reply to this video... yes it's important.

[YoMags]

Bless you, Rekisum - Yes, it is important - and your comment is much appreciated.

[chriseycarlyyeah15]

im double joint as i have seen. and foot hurst somtime with like random spams of pain that just happen raondomly is that eds?

[YoMags]

What feels like random pain can be your joints even slightly subluxing as you move (or even in reaction to a muscle spasm). To start, try to find a doctor familiar w/EDS or a Sports Medicine doctor who treats lots of sprains and strains. To be definitively diagnosed you may have to be evaluated by someone specifically skilled in diagnosing EDS. There are 9 points on the Beighton scale of hypermobility to qualify for H-EDS and there are other criteria for Classical EDS and Vascular EDS.

[jmckjones]

YoMags, my joints only subluxed for 40 years. At 41 I got bifocals and dislocations. Sooner or later the stretchy ligaments get stretched to the point of joint weakness. Brace up now!

[Insaneymaney]

Thank you for the information on the side, I have sent you a message and am curious as to if I may or may not have EDS. If anybody else her has EDS, please check out my video "robyn's got talent," and tell me if you think I have EDS too. It would help me by a lot, if I haven't been diagnosed with it yet, thanks. (:

[Wolfsbane909]

I am doulbe jointed in the elbows giving me extra circular generated torque in ALOT of sports being able to perform better than that of a "normal"

Tennis, badminton, squash,(slicing, smashing)

Bowling(backspins)

Boxing(hooks & uppercuts, 85+ punches a mintue!)

swimming(free style & breast stroke)

jogging

MMA (eagle claw, fist of hung, wing-chun, Aikido-bendeable elbows = no possible armbar)

Baseball(pitching curve, corkscrews & sliders, 90+mph fast ball)

Gymnastics( rings)

drums

[wernhead60]

Know of anyone on SSI for EDS my sister has fibromyalgia and gets SSI and I have been denied for having EDS.. any input

[germanmonkeyslayers]

i am double jointed and i have so many problems with my knees, ankles, thumbs, and wrists! it sucks! and then on top of that i love to play sports and so my thumbs get dislocated all the time and i sprain my ankles easy and i always have pain in my knees. ugh! i hate it!

[talkative100]

ime 13 ive got hypermobility and iduble jointed in all my jjoints the doctors say and ive been paniking because of people saying its bad 4 u and i dont no how it doe as i cant feel it but the thing is my doctor has sed to stop doing so much stuff as ime apparently getting too flexible to the point where it is really not gud 4 me

[DancerInside]

hey i have it too... badly i can do so many tricks and i dont evn move when i dislocate. plus meds dont wont and the ER doctor called me a drugy! it sucks