3rd attempt to get him to sleep, 4 more

UPDATE: He has since seen many, MANY doctors, all of which are very intrigued by his symptoms but all of them have been stumped by his condition. We are sent from specialist to specialist,
We are told there is clearly something going on, he is now 2 1/2 and was diagnosed with RLS (restless leg syndrome... youngest in the world apparently) and started on medications for it. They appear to do nothing at all, so the doctor isnt sure if its the right diagnosis.

A Pediatric Neurologist started him on a low dose muscle relaxer at night only and suddenly he is a different kid at night (stil a late night child but once asleep he will stay asleep)
he is the same in the day but we can deal with the non-stop moving during awake hours.

He is generally happy but has a lot of frustration from speech

His speech is delayed he only has about 10 words to date, doctors believe it may be related to the movement disorder (still undiagnosed) we are currently working on it and seeing some improvement

This is typical how he is when he wakes in the middle of the night, he is alseep if you look at him but clearly in pain. We massage his legs or use pressure seems to help slightly, on bad nights it doesnt help at all. We have tried Tylenol/Motrin at bedtime and there is no difference.


10:30pm he hasnt slept since 1pm, this is the 3rd attempt, and takes 4 more (almost an hour) happens every night, and every nap, can't leave him to cry he has severe reflux-

His legs and arms are very stiff like he's flexing all his muscles at the same time, has had eeg- normal, and normally is put to sleep in a dark room but for the video i did it downstairs- no difference, just seeing if anyone else has a baby like this- they grow out of it- lol?

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[CaseyJones1926]

Hi, no we are still dealing with this (he is 19 months now) I just posted a bunch of other videos for the doctors to view.. he has to get a lot more testing done... hopefully they figure it out- how is your son?

[erieristrawberry]

did he grow out of it? this looks just like my daily routine with my now 1 yr old !!