Tell Me What Time It Is: Doctors and Surgeons and Nurses, Oh My! (Part One)

The true story of 14-year-old Lewis Schofield, an award winning professional kid with cool ideas, Asperger Syndrome (a form of Autism) and now, Myasthenia Gravis, too. Myasthenia Gravis is a life threatening, debilitating, rare and complex neuromuscular auto-immune disease for which there is no cure. It strikes 1 in 500,000 children (Source: Karen Hill-Whitson, president of the MG Ontario chapter).

Lewis underwent a thymectomy on June 10, 2009 at the Hospital for Sick Children in Toronto, Ontario (Canada), He decided a month prior to his surgery that he would create a video that would help explain Myasthenia Gravis and why thymectomies are sometimes performed on people diagnosed with MG.

His original video entitled "Tell Me What Time It Is: My Life WIth Myasthenia Gravis" which was uploaded to YouTube in March 2009 is being used by Sick Kids as well as by a number of health organizations and MG chapters around the world.

This is Part One of this video. In Part Two, Lewis discusses openly what he went through on the day of his surgery while Part Three discusses what happened after his surgery, from the time he was in the Critical Care Unit until he went back home to Peterborough (ON).

Visit Lewis at his website at www.thisislewis.net to learn more about Lewis "Codeboy" Schofield.

Interested in reading more about MIC? Go to our blog at http://www.midnightinchicago.wordpress.com

Category:

Education

Tags:

• Autism
• AS
• Asperger Syndrome
• ASDs
• MG
• Myasthenia Gravis
• Midnight In Chicago
• Peterborough
• Ontario
• Canada
• teen
• disabilities
• neurological
• autoimmune
• neuromuscular
• rare
• complex
• cure
• Lewis Schofield
• Sick Kids Hospital
• Toronto
• Chicago
• health
• codeboy
• tipsfromcodeboy

[donnylyn]

Excellent video Lewis! I hope folks who view this watch all three of your videos. I was DX'd with Generalized MG in 2001 (never have had a droopy eye lid or double vision - but I have no use of my arms and legs after 10 minutes of using my muscles, bad swallowing too). Even without being able to move, I found the fear to be the worst part of MG. Your video is excellent in explaining thymectomy and MG. Great job!!! Thanks.

[1210donna]

you did a fab job with this Lewis... are you going to become a doctor? You'd make an informed and humorous one :-)

[elenacerasela]

This young man could already be a Professor. Very intelligent and well spoken. I can say I learned easy from his explanation and visual aids.

[russa86]

Great video!