Marfan Syndrome
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you know i think marfan is actually a miracale.its becouase i ALSO have asperger syndrom... but not the servere one. why you ask? bullying. so BECAOUSE i have asberger syndrom i WOULD get bullyed more frencruntly but becouse im godzilla hight i dont like a few days ago when i was sitting a kid was like"hey you wanna fight with me?!" then i stood up and he seid"thats what my friend seid not me!".plus i dont have a stretched heart -phew-. so to some it may be a curse but to me its a miracale.
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Expression on her face shows that she feels bad because people are always staring at her.
I am surprised by that, because I do not see any body deformity. what I see is a beautiful young woman.I have very similar body structure, and I have "lost" so many years worrying what do people think about it. It may sound a cliche but it really isnt worth it! So for all Marfans out there - just enjoy your body, you have the right to be thin, long, unique and to feel beautiful about it.
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If you recognize yourself in this video, you should undergo the genetic tests. It´s better to unnecessarily spend some money, than die in 30 or 40 years. Trust me.
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I just came home from my sons dr/s appointment ( him & my husband have it) I came on here to double check something I saw in his echo-cardiogram ... It is not a syndrome I would wish on anyone and I hope people who think they have it check with their doctor, untreated can kill you young and treated can help save your life ( my father in law died when he was 30 they had no idea the family carried Marfan Syndrome ) It is not bad if you take care of yourself, and follow all doc's instructions :D
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@oDannnYx I believe its a syndrome not a disease.. :D but definitely check with your doctor to know for sure .. it could save your life to know :D
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pretty sure I have this disease:(
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:O i know this is sorta bad but I WANT IT SO I CAN BE JUST LIKE L!!! XD
Like if you have Marfan's too!
Hey, don't knock it, Abe Lincoln had it too.
emurphy66 6 months ago 28
her hands are so beautiful.
burrrandy 10 months ago 22