Neurofibromatosis - About The Children's Tumor Foundation

The Children's Tumor Foundation is dedicated to finding a cure to the neurofibromatoses (NF) through support of research. This video explains NF and what we are doing to help the cause of those affected.

Category:

Education

Tags:

• Children's
• Tumor
• Foundation
• Neurofibromatosis
• NF1
• NF2
• Schwannomatosis
• Nonprofit
• NF
• CTF

[brittanyrox122]

i have NF1 its not a easy thing to live with and not everything was talked about in this video

[CTForg]

@brittanyrox122 Hey Brittany, as you know NF has many different complications so it's hard to address everything in a short video. We have touched on the major aspects of the disorder in the hopes that it will compel interested individuals to learn more. Hope you are doing well and feeling great!

[alkathemy]

all people involved in this are angels may god bless all.

[BITTER0N]

We are very lucky & take it for granted.Praise God my children are healthy.

[silvweatest]

@MrGemma0 I have NF1 Iv known I had it for as long as I can remember, but they discovered it when I was around two. Others may not show symptopms. Each person is different. My bowed tiba bone is what alerted the doctors to me having it. I also had the fibromas and the cafe al ala (sp?) spots. It may be around 2, but it could be younger or older. It really does depend on the person.

[MrGemma0]

What age do you first Start seeing symptoms

[WTF123443]

i have Nf1. it isn't painful. i dont have learning disability. but i have accidents. a lot. everyday is a struggle knowing that im a high school student who still needs to be potty trained. ive had no surgery. there is no cure. i have to live like this forever. im the only one in my family who has shown sighns. and worst of all, i have to keep my nf a secret. i CANT spread the word. and it hurts me every day.

[PaganDANNYbee]

I would make me soo happy if thay found a coure. I hate NF the pain sucks. lol.

It would be neet to meet outher people that has NF. I dont that maney

[janejn7788]

i feel so sad.

[carlosperezvidal]

I have NF but i forgot which type i had ive gotten used to it but if i hit one of those bumps that NF gives you it hurts alot i got some in my heart and that is why i gotta go to miami childrens hospital every 6 moths to get checked

[browniethepirate]

I'm the only one in my family with NF(1) from what I know. My mom was adopted, so I could've gotten it from her family, and there's nobody from my dad's family who has/has had it.

[ThatKidKnows]

There is no cure for NF :( it's a genetic mutation. It can happen to anyone. I have NF. Learning difficulties too... :(

[Walmays]

I have NF1 so does my oldest son.