From HBP To Dialysis Part 2

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Howto & Style

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• From
• HBP
• To
• Dialysis
• Part
• 2

[BRYANTM15208]

Very good job on the video. My Husband's high bllod pressure has him on dialysis also. Its been a year now and we are looking into transplant but he needs dental work first. He was laid off months before he started dialysis now does not have dental insurance. We also live in Pgh and would like any info you can give. He's in his early 50s and after treatment gets tired and has to go to sleep. He's a cook and is having a hard time with food and fluid intake. He loves to drink water and cook!

[Jamaule05]

@BRYANTM15208 I also love to drink water and that's really all that I drink. It took some time, but I had to really discipline myself not to eat foods high in potassium and phosphorus. My PTH level is around 1200, which is high, but it used to be over 2000. For a while my kidney doctor thought that I would have to have my parathyroid removed. Then I went on a mission, I only eat bread, one chicken and rice burrito, with light cheese and lettuce and drink water. Everyday. And I take my binders.

[Jamaule05]

@BRYANTM15208 At the beginning of this year, I got my parathyroid level all the way down to around 500, without taking sensipar, because it makes me sick. I'm just very disciplined. Your husband being a cook, has to be difficult to not eat the foods he wants, I see this as his test to overcome. Because of what I'm doing and eating things in moderation, I'm at the best health I can be on dialysis, also I changed my thought process and attitude about my situation, yes it didn't happen over night.

[Jamaule05]

@BRYANTM15208 Sorry for the lengthy response. One more thing, and this is the most important resource that has helped me during these last 7 years. God. I'm not trying to push my faith on to you, but God has been so good to me these 7 years. My progression from the beginning until now, I'm so thankful. People don't even know I'm sick unless I tell them. I live my life, not focusing on kidney failure, but on all the things I'm going to do when I get off dialysis. He has helped me so much.

[angieskidney]

How did you get over the fear? My fistula rolled too much so the nurses were not able to establish buttonholes properly but I always felt it was because I didn't have the same nurse dedicated to doing it for 6 times in a row but only twice. I should have started it myself so it would have been the same angle but I was too afraid .. especially without proper training and having only done Aranesp needles in my belly. Definitely not the same thing.

[Jamaule05]

@angieskidney How did I get over the fear? I wanted to be in control of as much of the process I could be. Also some times nurses are just trying to do their job, and don't understand what we feel and go through when they make a mistake. I missed a few treatments and had to go to the hospital because of it. My arm swelled up huge and I was scared that I wouldn't be able to get my treatments. I also have a high pain tolerance. How did you do the needles in your stomach?

[BRYANTM15208]

Oh yes without him I dont believe we would be where we are now He has broughy us a long way. Thank God my husband does noy look like what he has been through! Yes he is still having trouble with his phosphorus levels and his water weight being over. Not sure if its he dry weight that needs to be changed or what. He goes to dc you finish the rest. Im praying for the transplant soon! Thanks for getting back to me

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[Jamaule05]

@angieskidney A nurse showed me how to stick myself first, and I'm swallow so when I did it, it was easy to hit the fistula. Yes the needles are blunt so what happens is I've created 2 tracts and the blunt needles fit right in the tracts. There is no pain either. I thank God that I've had great success with it. Thanks for your comments on the video, I'm glad the message is clear to understand. Yes a nurse did do the video.

[Jamaule05]

@lynnb2003 sorry for the delay, I put the needles in because some of the nurses was blowing my veins and messing up my arm. At first I nervous, but after a couple of times I loved doing it. I'm looking to be in as much control as I can. I also have my fluids under control now and beat the addiction of drinking so much. I average about 1 kilo of fluid every treatment, Right now I'm in the best health since I got sick in July of 2003. How's your blood sugar levels?

[angieskidney]

Did you establish the buttonholes yourself or did a tech or nurse? Since you have buttonholes those needles are blunts not sharps right? Very good video by the way! Thanks for sharing this (both parts). I posted your vids on my kidney forums for others to see them! You did a really good job at explaining everything! Did a nurse do the videoing?