Seizure activity and Self-Injurious behavior in Autistic Person

Sister and mother of autistic young man in real crisis situation. Not simulated. Emergency medical intervention in autistic person presenting with status epilepticus and self injurious behavior EMS autism awareness complex presentations neurology psychiatry psychology medical behavioral disorders autism spectrum severe profound

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• myoclonic
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• Autism Spectrum
• Epileptic Seizure

[mizzamaya420]

I feel awful for Jamey. I dont know much about autism, but might be kknowing more, my son is being tested for it right now. i dont want any of my questions to sound stupid or rude, I would just really like to know. Is the self injury sort of a way to calm himself down? Are there certain tactics or getures that your family uses to calm him down?

[CDFoakley]

We use a lot of different interventions to soothe him,,,you have to have a grab bag of things in case one flops, you can reach for the other intervention..ie..if massage fails, you grap a colored sensory egg or re-direct or put him in a warm aromatherapy bath, you just keep trying until you find out what will soothe and comfort him..sometimes it's just holding him tightly and hugging him..other times he's so self abusive we have to give him meds....but he is getting better...very slowly, .....

[themickeymouseband]

watching this is so scary. i know i have atypicalautism but, i dunno. if i knew i had to live my life like this id kill myself because autism affects people in so many ways. and its a dissability that not many people understand. And the fact that it cant be treated is unbearable. i cant even bring myself to watch anymore of this video.

[CDFoakley]

Actually, yes it can be treated and we've made A LOT of progress...I show these videos also because it documents some of the most severe sides of autism yet, I know, believe and trust that my son is and will get better and there will be more and more positive videos to show....healing takes time in some cases, sometimes years before you see major progress...we just keep trying. never give up. never lose hope.

[DirectorKJK]

why in the hell would someone record this. he looks like hes in so much pain

[CDFoakley]

Because I'm tired of this willful apathy, ignorance and cowardice of others who can't handle reality of certain sides of autism...we are not hiding in the walls of our home anymore. We aren't going to be ashamed of what we or others go through. If you don't like, don't watch. Go watch Brittany Spears or Paris Hilton. Read the National Enquirer. Forget all about other people's pain and how you may bring awareness or hope to a tough situation....thanks for support

[christschool]

What many people don't understand is just how much parents suffer too, perhaps even more, when their children are having difficulties. Anyone that would deny this family services is an evil bastard. Many autistic people suffer from these types of seizures and I believe this family is trying their best to bring this to light. Many parents would not have the internal strength to endure this and would simply wish their and their child's life away. I applaud you guys and hope an answer comes.

[hakimpolice]

sorry for your son and thankx for his sister.



[jennalah]

I came across your video and I have to say that the level of care that you give your son is beyond words. I know personally by working with individuals who have autism and other developmental disabilities just how much love, dedication and effort goes into a single days work. Your videos definitely display this, and it's uplifting to see parents who go above and beyond in both caring and advocating. God bless you.

[DarkQuietWyattON]

I never get over what a strong supportive family you guys are for Jamey. I am sure Jamey is less scared at home than he was at the group home. You guys are awesome

[mrbluenun]

Hi CDFoakley,

it is always hard trying to get a decent video while at the same time trying to keep those whom are fitting from falling and or injuring themselves.

Looking at this 'coldly' you have struck a nice balance, though I do realise it is more by luck than judgement especially in the early hours when something like this happens.

I started with nocturnal fits until I was around 40 and have had infrequent but injurious fits falling from my feet ＆ landing on my head.

My best wishes to you

[zhenichka18]

what causes self injury activities?

i wish your son and you and your family all the best. thats great that you are making videos and letting people know

[waljayo]

When will we man up as a race and realize that there is absolutely no point in severely retarded people existing. We should abort them as soon as they are diagnosed. They literally have no functional consciousness and cannot socialize. There is simply nothing in there, it is a flaw of our genetics and it simply a waste of one's lifetime to care for these people. It is also a huge burden on society. I hope we come to realize this and not let religious bs get in the way.

[Covie11]

i am so sorry you and your sons well be in my prayers

[Champ675]

I have a mild form of autism and cerebal palsy that have brought about self injuriouse behavior. I know all about self injury, I've expierienced it first hand and believe me, it ain't pretty!!!!!!

[Krygeryo]

I work with people who have autism, and in most cases seizures. I've thankfully never witnessed a seizure this long. I've seen them ''worse'' but they are only up to 2 min. I do what I must, but it still hurts me aswell, and I don't even have real relations to these people. So I can't even imagine what you and your family are going through when you see him in this condition. Much love, and good luck with your son.

[Gatecrasher12]

@CDFoakley Well Said!!

My heart goes out to you and your family.

Poor Jamie. :-( xoxoxoxox