My goal for my life is to be accepted into Purdue and study medicine, and I hope to find a cure for this disease. your video made me remember my goal, so thank you.
My leg has completely "spazzed out" and what I mean by that is that it started twitching violently (which made it hurt worse.) It has turned purple and the disease has creaped up to the base of my neck and on bad days, I can't even sit down. (I went undiagnosed for 2 years and I am 17) but my pain helped educate some people that day. Thank you for this video, you understand the pain, and you know just what to say. Since I got diagnosed, I got a kitten, he is my baby,
I have RSD the worste moment I have had with this disease: I was in a hospital for trying to kill myself because no one understood the pain I felt (I suggest not being stupid like me, I hurt alot of people) well anyways I was sitting through a hospital lecture and all of a sudden, this searing white hot pain ripped up through my left leg from my ankle to my knee. Needless to say, I screamed. I got some funny looks, and this is the worste memory I have of the disease cause it hurt that bad.
My name is Erin and I also have RSD. I was diagnosed in March of 2010 after I broke my right foot in December of '09. I've had 15 lower lumbar sympathetic nerve blocks and they had the same effect on me. Right now I'm on an anticonvulsant and an antidepressant. They help relieve the burning sensation. I really like your mentality about not letting RSD be a backseat driver and surrounding yourself with positive people and pets. I have a dog and a cat and their company has worked wonders. :-)
My goal for my life is to be accepted into Purdue and study medicine, and I hope to find a cure for this disease. your video made me remember my goal, so thank you.
torylinnangel 3 hours ago
My leg has completely "spazzed out" and what I mean by that is that it started twitching violently (which made it hurt worse.) It has turned purple and the disease has creaped up to the base of my neck and on bad days, I can't even sit down. (I went undiagnosed for 2 years and I am 17) but my pain helped educate some people that day. Thank you for this video, you understand the pain, and you know just what to say. Since I got diagnosed, I got a kitten, he is my baby,
torylinnangel 3 hours ago
I have RSD the worste moment I have had with this disease: I was in a hospital for trying to kill myself because no one understood the pain I felt (I suggest not being stupid like me, I hurt alot of people) well anyways I was sitting through a hospital lecture and all of a sudden, this searing white hot pain ripped up through my left leg from my ankle to my knee. Needless to say, I screamed. I got some funny looks, and this is the worste memory I have of the disease cause it hurt that bad.
torylinnangel 3 hours ago
My name is Erin and I also have RSD. I was diagnosed in March of 2010 after I broke my right foot in December of '09. I've had 15 lower lumbar sympathetic nerve blocks and they had the same effect on me. Right now I'm on an anticonvulsant and an antidepressant. They help relieve the burning sensation. I really like your mentality about not letting RSD be a backseat driver and surrounding yourself with positive people and pets. I have a dog and a cat and their company has worked wonders. :-)
pinkcinderella 7 months ago