Essential Tremor (ET) & Deep Brain Stimulation (DBS) Surgery

Thanks for bearing with me as I share this off-topic video to bring awareness to Essential Tremor and my experience with Deep Brain Stimulation surgery.

If you have any specific questions about the disorder or treatment options (including the brain surgery experience), please feel free to message me or comment below. I am more than happy to respond and hopefully be of some help. More information about Essential Tremor can be found online at: http://www.wemove.org.

Love you guys & thanks for watching. xo Tracy

Category:

Education

Tags:

• Essential
• Tremor
• ET
• Deep
• Brain
• Stimulation
• DBS
• Surgery
• Medical
• Movement
• Disorder
• Nervous
• Hereditary
• Shaking

[2handsipper]

Drugs were ineffective for me. To many side effects. I went forward with the surgery Feb 2010. My mapping process concerns me. Any body side effects were undesirable. You mentioned your head twitching. Do you have access to your own programmer?

[trakat77]

@2handsipper Hello! I apologize for the delayed response. I agree re: side effects with the meds. If you just had the DBS surgery in February, it can take a little while to adjust to the programmng and get it "just right". My head twitched when a lead in the brain failed. I had to have corrective DBS surgery at that point. So far, no other twitching in my head. The programming is all done at my neurologist's office. I can only turn it off and on. :( Let me know how you're adjusting. Take care.

[prldvtec]

I have ET and it's sad to know that there's no complete cure for it....

Maybe we could ask for help from ETs from the other galaxy....

[trakat77]

@prldvtec I hear ya'. :o) Who knows?...maybe one day! I have every hope & confidence that they will find a cure for ET. Until then, it's a blessing that it can at least be managed and that we can continue with our lives in a productive way. When you're dealing with something like this, it's always better to stay focused on those things that you have to be grateful for...including the fact that this is not a degenerative disease. At least we have that. ;o)

[BARON62]

Lady, thanks for your Video, i think this help me to do something about my ET, i was too easy to understand you, you are very funny and beautifull woman. I´m a little scare about DBS, so i think i will try Medicine before. Thanks again and kisses.

[trakat77]

@BARON62 I'm so glad that you found the video helpful. Thanks so much for your nice comments and I hope that you find the medication to help in controlling your tremor. If the time comes that you need the DBS surgery, don't be afraid. It's really not that bad. :) I wish you all the best.

[guit3rg0d]

Last year, I noticed that when my thumb was in a certain position, it shakes. I thought it was strange but I played it off and thought maybe I was drinking too much caffeine or I was stressed or something. Unfortunately that wasn't the case. In the course of a year, the tremors spread everywhere. Literally. Now I have it in my back, abs, chest, hands, legs and arms. I'm noticing it in my neck as well just recently... I'm 17 years old and will be going to college this year.

This sucks.

[ClusterHeadSurvivor]

I am having DBS for Cluster Headaches. Thanks for posting this video. I appreciate it. My surgery is Feb 23,2012 here in Canada.

[anarkiatv]

anybody knows the cost??

[SARboy1303]

Thank you for posting this video. I just found out that I have ET and have had of for at least a year. I'm looking for info on treatments and your video helped make DBS a little less scary.

[shanti100123]

awww i So resonate with u i too have ET sense i was a baby so it was in my arms hands and moved into legs and at age 24 or so went to neck head and Voice is not medicated. i have so many health issues DBS is not available for me and ill tell u i was a mess before meds But now i have a ball and chain of meds and with out them i go thru with draws and it makes me feel so trapped But im always re centering my self i have my whole life im sure u understand how we do our best to hide our ET ty shanti

[EternallyRound]

Thanks for the vid. I tried meds but they made me feel like I was moving in deep water, so quit. I found for me that high fiber diet & good night sleep help some. Good luck!

[jlh2283]

Hello! I have it on my right side and head bobbing... I can't stand life. I get light headed, headaches, my body feels weak... Curious if you can tell us more about your experience with surgery like healing time, days in the hospital, etc. Did the doctor recommend it? I can't live at all and only maybe on a good day have 4 hours of off the couch time daily which usually results in headaches letting me know its back to lying down again. Anyone else have this problems? Thanks!

[GorillazFAN06]

I've got it in my head and I'm only 18. Life = Ruined.

[tntitan2011]

I will be undergoing DBS surgery in Sept 2011 for Bilateral Essential tremors. I know it may sound wierd but I am actually looking forward to having this done so I can have my quality of life back. Unless you suffer from these things ( in which you do ) you can't imagine how frustrating they can be. I look forward to updating you when mine is completed.