Hospital admission

As part of raising awareness for cystic fibrosis I have made a video a series of videos explaining what is involved with the disease and how I cope living with it.
To donate go to www.cftrust.org.uk or http://uk.virginmoneygiving.com/fundraiser-web/fundraiser/showFundraiserProfi...

Category:

People & Blogs

Tags:

• CF
• Cystic
• Fibrosis
• sixty
• five
• roses
• 65
• Physio
• physiotherapy
• antibiotics
• Hospital
• admissions
• medicines
• intravenous
• vlog

[sundersart]

All this regimen..i can't imagine it. You must have a strong personality to keep focused. Thanks for explaining it , it was very interesting. Actually i was going to say you could be a presenter or journalist, you have a realy engaging way of presenting informaiton.

[kenagal09]

@supersmileyface97 hi i have cf aswel and have a port cath. if you have only been in hospital twice in your whole life. you won't be getting a porta cath soon. they would only give one to you, if you get admitted into hospital more than at least once a year. good to hear you are so healthy!!!

[ashyjedi]

@FalseDisposition Keep strong! I have CF and I was very sick when I was younger, BUT around 6 or 7 I got wayy better. Ever since then my CF is only bad when I'm sick which usually isn't often. You never know your baby could have a mild case of it and still be a healthy happy kid. Just keep praying and stay hopeful =)

[catherinespark]

Hi, just interested to know, do you have to flush out your portacath in between hospital visits?

[supersmileyface97]

hey um, i have cf but i dont hav ea portacast, i rreally dont want one cause ive got a sevre fear o fneeles and things goin into me, sorry im just really scared now, im 14 and ive only been in hospital twice, do you think ill have to egt one?? D:

[harKazoid86]

O...M...G! That almost made me cry watching that... I haven't had IV's in 17 years now but they're well and truely in the post... I know I have all this to come myself. Can I just ask a question? In your 1st clip, you said you was infected with a very nasty specific resistant bacteria... I "only" have chronic Pseudamonas infection, I've heard of the Capacia species, is this what you have? I would really like to know :) Btw, IV's may have destroyed your veins but not your good looks! Take care :)

[glitsNglamxoxo]

How come they do no allow you to do your antibiotics at home? why do they make you stay in the hospital?

[FalseDisposition]

This is so interesting! But it shows that my baby's life with CF has just barely begun....

[mrsRLP920]

Hi Holly,

Thanks so much for sharing. I'm in the hospital now for a 2-wk tune up & probably going to get a port placed next week. It was nice to see that you have a port & that it doesn't stick out like a sore thumb even though you are very petite (as am I). It's my biggest worry that I won't be able to wear what I want because the port will stick out too much (pure vanity - I know!!). Thanks again for sharing. Be well! :-)

[theunseen2]

Well that was cool. Holly I hope your ok. I felt sick with the blood. I can't beloved that you are in there by yourself.? I'm only 13 but I would never be able to stay at a hospital alone. Then again you 18 so.